Category: Breast Cancer Risk

Hutch to help study cancer-sleep apnea link

Question:

Hutch to help study cancer-sleep apnea link

Go back to sleep and die, you fat, hairy spammer!

Response:

Hutch to help study cancer-sleep apnea link By Warren King Seattle Times medical reporter Fred Hutchinson Cancer Research Center scientists will help lead a national study on the link between two of the nation’s major health problems

Heart Tests: Flaws & Failings of MUGA

Question:

Mary, the cycling posts are at http://www.cyclingforums.com/showthread/t-83204.html ;-)

Well, this was in 2004. Did Susan have the shots? Or did she get rabies? Did the cat survive? What happened to the other animals? I’m on the edge of my chair … but really must go and hem those handkerchieves … Mary – Hide quoted text — Show quoted text –

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<snip irrelevant stuff You allan, seem unable to read & process information, & seem rather narrowly focused & intent on harassing & harming others, ….. on throwing as much sh*t as possible (slander, lies, innuendo), hoping some of it will stick & do damage, …… & you’re choosing to do this at a breast cancer support group. You want to start & lead a gang-bang here.

Oh do stop being silly, Susan. What happened with the cats, has nothing to do with the MUGA & ECHOcardiogram tests under discussion. And nothing said about it, can help Chocolate now, nor change what happened back then.

Quite. FYI: The docs say, that when you have cancer and/or lymphedema, it’s important Not to get scratched by cats.

But all doctors are liars so you don’t believe them … Mary – Hide quoted text — Show quoted text – Susan, Su_Texas  my opinions

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Mary, the cycling posts are at http://www.cyclingforums.com/showthread/t-83204.html ;-)

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Self Pity I never saw a wild thing sorry for itself. A small bird will drop frozen dead from a bough without ever having felt sorry for itself. D. H. Lawrence

Thank you. I wonder if he wrote that after he became ill with TB. Which reminds me that I have a tape of Kenneth Branagh playing a young Lawrence in "Coming Through" that I should rewatch while doing this interminable spring cleaning of the kitchen. Marilyn

Response:

Horsefeathers.

That’s polite … Do all the searches you want. That’s what the Google Archives are for. They do turn up some amazing things – the most amusing was when you told the cycling group that you thought you may have rabies.

What cycling group is that? But don’t use it as a lame excuse or justification to stalk, pester & harass me, …… because of your obvious inability to read & comprehend the written word, your inability to think & reason, your lack of good morals & mindset, …… because of Your problems, allan. My comprehension of the written word is as good as just about anyone’s, Susan.  Far as I can tell my ability to think and reason is pretty darned good too.

Yes – and I’m a stickler for such things. Mary one of the majority

Response:

Self Pity I never saw a wild thing sorry for itself. A small bird will drop frozen dead from a bough without ever having felt sorry for itself. D. H. Lawrence

Response:

Self Pity I never saw a wild thing sorry for itself. A small bird will drop frozen dead from a bough without ever having felt sorry for itself. D. H. Lawrence

How does he know? Tim

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Self Pity I never saw a wild thing sorry for itself. A small bird will drop frozen dead from a bough without ever having felt sorry for itself. D. H. Lawrence How does he know?

He DOESN’T :-) He’s dead too … it gets us all whether we feel sorry for ourwelves or not. Mary – Hide quoted text — Show quoted text – Tim

Response:

allan wrote; They do turn up some amazing things – the most amusing was when you told the cycling group that you thought you may have rabies. That was the same post where you said that Arimidex caused your lymphedema. Cats At that time, the almost-grown male cat Chocolate was acting very sick, off, aggressive. [Much later, I figured out he must have distemper or some such, partly by his BM.] It was horrible to watch him suffer, act aggressive & off, lurch around, howl & snarl. When I first saw something was wrong, I tried to pet & comfort him, then realized it was serious, that I was in danger, & backed away from him. And he started to foam a lot at the mouth, snarl, aggressively go after stuff (including me), stagger around, collapse. [He had been my favorite, the one who always greeted me when I got home, or came out of the house. So sweet, kind & caring.] He appeared to have rabies, & "for the good of the many", he needed to be put down, but I didn’t have anything to do it with, & didn’t know how to do it. Animal control wouldn’t help. And I was concerned that if Chocolate were rabid, this would put others (including people) at risk. I tried to get Chocolate in a cage, & get him to the vet, but he tried to attack me each time, so I gave up. I was raising six puppies to be dogs for disabled. They hadn’t had rabies shots, & I had to get them to the vet for that, ….. while dodging the sick cat & other cats. At the same time, a female cat came into heat, & some male cats showed up, were howling, competing & acting ugly. I didn’t realize all this, & didn’t understand what was happening until later. They made the most awful howling, & were aggressive & fighting each other, attacking. And the mama cat turned on her almost-grown kittens, attacking them, acting ugly. ??? The younger cats were very upset & acting off, & would rush at me, when they saw me, screaming. For safety reasons, I moved away for a few days or so. I’d come back, sit in the truck, ….. try to get out over & over, to get things done, …. & then jump back in the truck each time the cats rushed at me. Most of them were younger cats. Chocolate had been their major companion, care giver, source of fun, …. next to their mother, who was also rejecting them. And they were completely terrified, freaked out, & would run at me. Chocolate was from the mama cat’s first litter. I was concerned Chocolate had rabies, concerned I might get it, the dogs might, the other cats might, that it might spread. Since there’s no help here, I had to figure out what was wrong, & do what was necessary, as much as I could, …… but I didn’t know what to do. I’d pitch the cat food, as far as I could, to help get the cats back, …. then try to tend to the dogs. I managed to keep the dogs fed & watered, & to get them one by one, to the vet for rabies shots. Eventually, I figured out that the stray cats who were acting aggressive & off, were howling something fierce, snarling, acting ugly, & were terrorizing the young cats, …… were there because the mama cat was in heat. I live on the edge of a small city, there is a lot of rural area here, & there is rabies. I don’t know what you’re trying to make of this. ??? You allan, seem unable to read & process information, & seem rather narrowly focused & intent on harassing & harming others, ….. on throwing as much sh*t as possible (slander, lies, innuendo), hoping some of it will stick & do damage, …… & you’re choosing to do this at a breast cancer support group. You want to start & lead a gang-bang here. What happened with the cats, has nothing to do with the MUGA & ECHOcardiogram tests under discussion. And nothing said about it, can help Chocolate now, nor change what happened back then. If you are interested in cat diseases & behavior, then you might search for, read & post at a cat newsgroup. As added info; I don’t particularly like cats. An elderly dog who was dying, took up with a stray kitten, & shared his food with her. Since he liked her, I let the kitten stay, & she started to reproduce. I’d little experience with cats. Since she was semi-wild, she wasn’t catch-able. And since I had cancer, I had to be careful not to get scratched by her. In time, Chocolate did get better, & was himself again (loving & caring), but extremely weak. When I saw this, & saw him trying to eat dry cat food, I put out some canned cat food, mixed with water. He didn’t make it. As for the lymphedema, I did get sudden acute lymphedema, about a year & a half or so after I started taking Arimidex (to which I had severe adverse reactions), ….. & the lymphedema kept getting worse, until I stopped taking Arimidex. FYI: The docs say, that when you have cancer and/or lymphedema, it’s important Not to get scratched by cats. Susan, Su_Texas  my opinions

Response:

– Hide quoted text — Show quoted text – Self Pity I never saw a wild thing sorry for itself. A small bird will drop frozen dead from a bough without ever having felt sorry for itself. D. H. Lawrence Thank you. I wonder if he wrote that after he became ill with TB.

I’ve no idea, I was looking up something else (not DHL) and it leapt off the page. Which reminds me that I have a tape of Kenneth Branagh playing a young Lawrence in "Coming Through" that I should rewatch while doing this interminable spring cleaning of the kitchen.

I really should begin mine :-) Life’s so full of more interesting things to do though! Mary

Response:

I second what Mary said and appreciate her ability to say it nicely and accurately. Susan, at times you have been a caring group member. I hope you can focus on that and not your inability to trust the medical establishment and use what it offers. The bottom line is that doctors make their recommendations, you can do what you want. Chris – Hide quoted text — Show quoted text – Let’s poll our studio audience, Susan. [[Reply: I don't like attention & do not play to audiences. WHAT?? I share information & experiences, & hope for some positive and/or educated/knowledgeable responses, or hope it helps someone. Knowledge is power. You don't share experiences, you continually bang on and on about what you say are your experiences and your opinions about the morals and illegal practices of your medical advisers. If you were in UK you'd probably be sued for libel for what you've repeatedly said. I doubt that many people would be interested, in the topics I write about. So stop posting them. If you enjoy audiences, & imagine you have one somewhere, ..... then you'll probably play on to them regardless, drama queen allan, ..... to serve your own sick & selfish needs. From what you've just written, you give the impression of being manic-depressive, & on a manic high. ??? On the contrary, Allan is among the most level headed, respected, helpful, experienced and *loved* posters on this ng and has been for all the years I've been here. I don't need to list the others, we all know who they are - but I will add Catharine who is no longer with us so can't speak for herself. Catharine suffered hugely, not only from her cancer, but she gave an enormous amount of joy, support and love to the rest of us. And so does Allan. Since you act ugly here, try to do harm & enjoy it, i've no sympathy for you.]] Well, Susan, it’s apparent that several of us think that of you. I’ve tried not to say it for a long time but you’ve tried us all to the limit. We’ve tried to be patient, helpful, constructive, sympathetic, informative – just like your doctors, I suspect – and you have consistently been negative, foul mouthed and offensive. There’s no place here for that sort of attitude. Yes, from time to time everyone can get angry and upset, none of us minds people venting from time to time but not all the time. Most of us listen to what others say, we learn from them and begin to understand that anger is destructive and that we can be happier if we relax. The calm after the storm is healing, the storm itself isn’t. You’ve lost credibility and sympathy. It could be recovered if you stop your repetitive outbursts and begin to think of others. Why not give it a try? Mary

Response:

This is a breast cancer support group, Not your hunting & preying ground.

Yes, please remember that, Susan. If you can’t SUPPORT readers on this group just stay away. Mary

Response:

Let’s poll our studio audience, Susan. [[Reply: I don't like attention & do not play to audiences.

WHAT?? I share information & experiences, & hope for some positive and/or educated/knowledgeable responses, or hope it helps someone. Knowledge is power.

You don't share experiences, you continually bang on and on about what you say are your experiences and your opinions about the morals and illegal practices of your medical advisers. If you were in UK you'd probably be sued for libel for what you've repeatedly said. I doubt that many people would be interested, in the topics I write about.

So stop posting them. If you enjoy audiences, & imagine you have one somewhere, ..... then you'll probably play on to them regardless, drama queen allan, ..... to serve your own sick & selfish needs. From what you've just written, you give the impression of being manic-depressive, & on a manic high. ???

On the contrary, Allan is among the most level headed, respected, helpful, experienced and *loved* posters on this ng and has been for all the years I've been here. I don't need to list the others, we all know who they are - but I will add Catharine who is no longer with us so can't speak for herself. Catharine suffered hugely, not only from her cancer, but she gave an enormous amount of joy, support and love to the rest of us. And so does Allan. Since you act ugly here, try to do harm & enjoy it, i've no sympathy for you.]]

Well, Susan, it’s apparent that several of us think that of you. I’ve tried not to say it for a long time but you’ve tried us all to the limit. We’ve tried to be patient, helpful, constructive, sympathetic, informative – just like your doctors, I suspect – and you have consistently been negative, foul mouthed and offensive. There’s no place here for that sort of attitude. Yes, from time to time everyone can get angry and upset, none of us minds people venting from time to time but not all the time. Most of us listen to what others say, we learn from them and begin to understand that anger is destructive and that we can be happier if we relax. The calm after the storm is healing, the storm itself isn’t. You’ve lost credibility and sympathy. It could be recovered if you stop your repetitive outbursts and begin to think of others. Why not give it a try? Mary

Response:

Let’s poll our studio audience, Susan. Since Adriamycin and Herceptin provide the greatest risk of cardiotoxicity, has anyone received either without getting regular heart scans?

– allan I got Adriamycin and was told I did not need a Muga or any other regular heart scans.  Now you guys have me concerned with this.   I was given Digitek for palpitations but my cardiologist says it is probably just anxiety.  Should I be concerned??  Maybe I should just not read these posts and I’ll be ok. Bea

Response:

Heart Tests At the Cancer Center here, they do the MUGA test before you start chemotherapy. Then they assure you, that based on this one test, your heart is in tip-top shape & ready for chemo, ….. that there won’t be a problem with your heart. Then they refuse to do the MUGA test again, & do Not order an ECHOcardiogram, …… no matter how sick or weak you get while on chemo, or stay after chemo. The oncologists here are super-Not-checking for the damage that chemo does. This makes me Not trust any statistics concerning this issue, Nor the "success rates" of chemo. The oncs do keep ordering one CAT scan (with contrast) after another, …. a test which (for me) has never, ever shown anything wrong! The docs say that the important thing to focus on, is looking for new lumps, …… because that’s super bad in breast cancer care, & if they form, then you don’t have a chance, ….. at which time, they’ll have to basically pull out all the stops, in trying to help & save you (???), ….. ….. instead of their testing to see why you’re so sick & weak after chemo. They refuse to tell you about or do legitimate testing, ….. testing which might find what’s wrong. I super-don’t-like the terrorizing & traumatizing of patients, which the oncologists do, ….. in order to get your cooperation in whatever BS (nonsense) they insist on doing, on selling you. The MUGA can test for LVEF. The ECHOcardiogram checks that & many other things. If you want to have both tests, then you can ask for them. I did not know to ask for the ECHOcardiogram before chemo, ….. nor to insist on tests during & after chemo, to check for heart damage. The cardiologists have acted amazed, that the oncologists did not order these tests during chemo, to check for heart damage. The oncologists acted like the heart damage couldn’t happen to me, that that wasn’t a concern at all, ….. & they insisted I trust them, trust their judgement, choices, experience. Because I did trust the doctors some, I got repeatedly harmed by them. These betrayals hurt a lot then, & still hurt now. The damage done is permanent & painful, disabling & life-threatening. I’m hoping to help others avoid making the same mistakes, when seeking cancer care. Susan, Su_Texas  my opinions PS   Second-Opinion from Heart Doctor I met the second cardiologist today. [I also kept another appt today, & am extremely exhausted! Also, one of the dogs broke it's chain fastener (a welded ring) early this morning, & I had to buy & replace some parts before keeping the first appt. Also, it's very hot weather here, & I've no A/C in the house. Whew!] The cardiologist said: heart cath, pacemaker & defibrillator, & possibly a LE-VAD (sp?) in the stomach. I’m not too keen on having a heart transplant, & he wasn’t too keen on it either. Yes! He gave me two meds to go with the Lasix. Inspra & Altace. I had to wait an hour or two, after I got to this appt, but I had fun doing it. :) There was a guy there who had known my great-Uncle Dud & his twelve children (mostly the children), …… who had grown up in this area, but who moved away & then returned after retirement. We exchanged a lot of stories about that family (WEHT), as well as shared some about our own life experiences. Fun! Time to go get another tub of water, then tend to the dogs & puppies again.

Response:

– Hide quoted text — Show quoted text – Let’s poll our studio audience, Susan. Since Adriamycin and Herceptin provide the greatest risk of cardiotoxicity, has anyone received either without getting regular heart scans? — allan I got Adriamycin and was told I did not need a Muga or any other regular heart scans.  Now you guys have me concerned with this.   I was given Digitek for palpitations but my cardiologist says it is probably just anxiety.  Should I be concerned??  Maybe I should just not read these posts and I’ll be ok. Bea

LOL! You could be right! Mary

Response:

This is a breast cancer support group, Not your hunting & preying ground.

– allan we don’t see things as they are, we see them as we are. — Anais Nin

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You’ve proved to be a common troll & stalker, allan.

I think just about everybody in this group would disagree with that statement, so I think I’ll go with the majority  :-* You play the Determinedly-Dumb & Dastardly game over & over, & act like (in your mind), it makes you wonderful somehow. ???

Neither determinedly, dumb or dastardly are proper nouns – there’s no need to capitalize them, honest  ;-) I didn’t make a false statement, "fallacy" as you’ve claim, …… about my experience with the MUGA test, or about what the Cancer Center just told me about it.

Horsefeathers. Do all the searches you want. That’s what the Google Archives are for.

They do turn up some amazing things – the most amusing was when you told the cycling group that you thought you may have rabies.  That was the same post where you said that Arimidex caused your lymphedema. It’s a good thing you didn’t say that here – you probably wouldn’t get away with it  ;-) But don’t use it as a lame excuse or justification to stalk, pester & harass me, …… because of your obvious inability to read & comprehend the written word, your inability to think & reason, your lack of good morals & mindset, …… because of Your problems, allan.

My comprehension of the written word is as good as just about anyone’s, Susan.  Far as I can tell my ability to think and reason is pretty darned good too.  And morals?  You’re talking out your hat. This is a breast cancer support group, Not your hunting & preying ground.

Then may I suggest you give up the self-serving garbage and try and provide a little support instead of all the misinformation and public whining?  I hate professional victims. Have a nice day :-* — allan we don’t see things as they are, we see them as we are. — Anais Nin

Response:

As we established earlier, the MUGA scan is a more accurate and consistent diagnostic tool for measuring heart damage than an echocardiogram. Your refusal to acknowledge the fact doesn’t make it any less true :-D [[Reply: You've stated that the MUGA test is more accurate for measuring one thing, LVEF, ..... than the ECHOcardiogram. So far, I've not consulted with the Cancer Center or a doctor about your statement, to see if it is true or not, or to see if this degree of accuracy concerning that one test (LVEF) matters. IF it is true, then it might be best to get the LVEF testing done with the MUGA test. But you'd still need the ECHOcardiogram, to test for many other kinds of heart function or heart damage.]]

Let’s poll our studio audience, Susan. [[Reply: I don't like attention & do not play to audiences. I share information & experiences, & hope for some positive and/or educated/knowledgeable responses, or hope it helps someone. Knowledge is power. I doubt that many people would be interested, in the topics I write about. If you enjoy audiences, & imagine you have one somewhere, ..... then you'll probably play on to them regardless, drama queen allan, ..... to serve your own sick & selfish needs. From what you've just written, you give the impression of being manic-depressive, & on a manic high. ??? Since you act ugly here, try to do harm & enjoy it, i've no sympathy for you.]]

Since Adriamycin and Herceptin provide the greatest risk of cardiotoxicity, has anyone received either without getting regular heart scans? [[Reply: Yes, I was given Adriamycin, without getting heart scans from the oncologist, during or after this chemo, ..... even though I was quite ill from the chemo & then the Arimidex.]] Susan, Su_Texas  my opinions

Response:

I spoke with the cancer center, & the MUGA test doesn’t actually check very good for heart damage. All that the MUGA report states, the only sentence in it, ….. is about the left ventricular (ventricle ?) ejection fraction, the percent. The MUGA test checks only one thing. It does NOT adequately check for heart damage or malfunction. Before (or if) starting any cancer treatments, I would recommend the ECHOcardiogram, which can check this & many other things about heart function, …… & which is a simple, non-invasive, not-radiation-based, not-chemical-based, ultrasound test. Susan, I’ve had you in my twit filter for a heck of a long time but decided recently to check things out to see if they’ve changed. When you start spouting misinformation and recommending that misinformation to other cancer survivors it’s time for me to speak up. Rant and whine all you like, but your information above is medically inaccurate. If you don’t know what a MUGA scan does, why the LVEF measurement is important or what else the doctor can see I suggest you This is a cancer *support* newsgroup. Lying to people or making up stories to fill the gaps in your own limited medical knowledge isn’t support. Before you start passing out advice perhaps it’d be good to make sure your information is solid – and in this case it isn’t. And now, back to the twit filter you go. *plonk* — allan we don’t see things as they are, we see them as we are. — Anais Nin

I’m posting from personal experience, & from what the Cancer Center just told me about the MUGA. They said the report contains one sentence, & that all it says is the LVEF percentage. If this information is incorrect, then the Cancer Center lied to me about it. And I doubt they did. Also, a whole lot more than the LVEF needs to be checked, ….. before, during & after chemotherapy, ….. & the ECHOcardiogram can do this. It’s the preferred heart test by cardiologists. If you can’t face or deal in facts, truth & reality, allan, then that’s your problem, ….. of which you seem have many, including the need to act f-ugly in public, to encourage others to do so, & to brag about it. Since you’ve always acted nasty to me here, I don’t expect your behavior to change for the better, ….. nor (as you well know), do I value your opinions or bad games, the harm you try to do. Please keep trying Not to read my posts. Learn to practice some impulse control, self-control, OK? You’ll be a better person for it. Nah. That wouldn’t be any fun. I think maybe instead I’ll start reading your posts and pointing out the inaccuracies – along with providing the correct information. It was kinda amusing that when your fallacy was pointed out you accused the medical facility of lying to you. They’re not the ones who’s credibility’s shot here, Susan :-) Most people here are trying to support each other and IMO your posts are completely self-serving. Anyone capable of searching on your email address can find out exactly what kind of person you are. Suck a search is highly recommended. Have fun. I know I will ;-D Su_Texas writes:

You’ve proved to be a common troll & stalker, allan. You play the Determinedly-Dumb & Dastardly game over & over, & act like (in your mind), it makes you wonderful somehow. ??? I didn’t make a false statement, "fallacy" as you’ve claim, …… about my experience with the MUGA test, or about what the Cancer Center just told me about it. Do all the searches you want. That’s what the Google Archives are for. But don’t use it as a lame excuse or justification to stalk, pester & harass me, …… because of your obvious inability to read & comprehend the written word, your inability to think & reason, your lack of good morals & mindset, …… because of Your problems, allan. This is a breast cancer support group, Not your hunting & preying ground. Susan, Su_Texas   my opinions

Response:

- Hide quoted text — Show quoted text – Heart Tests At the Cancer Center here, they do the MUGA test before you start chemotherapy. Then they assure you, that based on this one test, your heart is in tip-top shape & ready for chemo, ….. that there won’t be a problem with your heart. Then they refuse to do the MUGA test again, & do Not order an ECHOcardiogram, …… no matter how sick or weak you get while on chemo, or stay after chemo. The oncologists here are super-Not-checking for the damage that chemo does. This makes me Not trust any statistics concerning this issue, Nor the "success rates" of chemo.

As we established earlier, the MUGA scan is a more accurate and consistent diagnostic tool for measuring heart damage than an echocardiogram.  Your refusal to acknowledge the fact doesn’t make it any less true  :-D Let’s poll our studio audience, Susan.  Since Adriamycin and Herceptin provide the greatest risk of cardiotoxicity, has anyone received either without getting regular heart scans? — allan we don’t see things as they are, we see them as we are. — Anais Nin

Response:

Please keep trying Not to read my posts. Learn to practice some impulse control, self-control, OK? You’ll be a better person for it.

Nah.  That wouldn’t be any fun. I think maybe instead I’ll start reading your posts and pointing out the inaccuracies – along with providing the correct information.  It was kinda amusing that when your fallacy was pointed out you accused the medical facility of lying to you. They’re not the ones who’s credibility’s shot here, Susan  :-) Most people here are trying to support each other and IMO your posts are completely self-serving.  Anyone capable of searching on your email address can find out exactly what kind of person you are.  Suck a search is highly recommended. Have fun.  I know I will  ;-D — allan we don’t see things as they are, we see them as we are. — Anais Nin

Response:

I spoke with the cancer center, & the MUGA test doesn’t actually check very good for heart damage. All that the MUGA report states, the only sentence in it, ….. is about the left ventricular (ventricle ?) ejection fraction, the percent. The MUGA test checks only one thing. It does NOT adequately check for heart damage or malfunction. Before (or if) starting any cancer treatments, I would recommend the ECHOcardiogram, which can check this & many other things about heart function, …… & which is a simple, non-invasive, not-radiation-based, not-chemical-based, ultrasound test. Susan, I’ve had you in my twit filter for a heck of a long time but decided recently to check things out to see if they’ve changed. When you start spouting misinformation and recommending that misinformation to other cancer survivors it’s time for me to speak up. Rant and whine all you like, but your information above is medically inaccurate. If you don’t know what a MUGA scan does, why the LVEF measurement is important or what else the doctor can see I suggest you This is a cancer *support* newsgroup. Lying to people or making up stories to fill the gaps in your own limited medical knowledge isn’t support. Before you start passing out advice perhaps it’d be good to make sure your information is solid – and in this case it isn’t. And now, back to the twit filter you go. *plonk* — allan we don’t see things as they are, we see them as we are. — Anais Nin Su_Texas writes:

I’m posting from personal experience, & from what the Cancer Center just told me about the MUGA. They said the report contains one sentence, & that all it says is the LVEF percentage. If this information is incorrect, then the Cancer Center lied to me about it. And I doubt they did. Also, a whole lot more than the LVEF needs to be checked, ….. before, during & after chemotherapy, ….. & the ECHOcardiogram can do this. It’s the preferred heart test by cardiologists. If you can’t face or deal in facts, truth & reality, allan, then that’s your problem, ….. of which you seem have many, including the need to act f-ugly in public, to encourage others to do so, & to brag about it. Since you’ve always acted nasty to me here, I don’t expect your behavior to change for the better, ….. nor (as you well know), do I value your opinions or bad games, the harm you try to do. Please keep trying Not to read my posts. Learn to practice some impulse control, self-control, OK? You’ll be a better person for it. Susan, Su_Texas  my opinions

Response:

I spoke with the cancer center, & the MUGA test doesn’t actually check very good for heart damage. All that the MUGA report states, the only sentence in it, ….. is about the left ventricular (ventricle ?) ejection fraction, the percent. The MUGA test checks only one thing. It does NOT adequately check for heart damage or malfunction. Before (or if) starting any cancer treatments, I would recommend the ECHOcardiogram, which can check this & many other things about heart function, …… & which is a simple, non-invasive, not-radiation-based, not-chemical-based, ultrasound test. Susan, Su_Texas  my opinions

Response:

The MUGA test checks only one thing. It does NOT adequately check for heart damage or malfunction. Before (or if) starting any cancer treatments, I would recommend the ECHOcardiogram, which can check this & many other things about heart function, …… & which is a simple, non-invasive, not-radiation-based, not-chemical-based, ultrasound test.

Susan, I’ve had you in my twit filter for a heck of a long time but decided recently to check things out to see if they’ve changed.  When you start spouting misinformation and recommending that misinformation to other cancer survivors it’s time for me to speak up. Rant and whine all you like, but your information above is medically inaccurate.  If you don’t know what a MUGA scan does, why the LVEF measurement is important or what else the doctor can see I suggest you This is a cancer *support* newsgroup.  Lying to people or making up stories to fill the gaps in your own limited medical knowledge isn’t support.  Before you start passing out advice perhaps it’d be good to make sure your information is solid – and in this case it isn’t. And now, back to the twit filter you go. *plonk* — allan we don’t see things as they are, we see them as we are. — Anais Nin

Response:

100-Percent Childhood Obesity Predicted by 2044

Question:

100-Percent Childhood Obesity Predicted by 2044 By Vivian Richardson, Ivanhoe Health Correspondent Americans are fat, and they will keep getting fatter unless they start getting more exercise. Biomedical researchers from the University of Missouri-Columbia predict that despite all the efforts to reverse the trend, every United States child will be considered obese by 2044. Every adult will be obese by 2058.  Researchers Frank Booth, Ph.D., and Simon Lees, Ph.D., came up with the weighty prediction by extrapolating the current rate of increase of obesity among children and adults. "If we don’t get off the ball and do something now, we’re going to be approaching 100 percent," Booth tells Ivanhoe. As part of a lecture, Booth cited statistics that show a three- to four-fold increase in the percentage of overweight children in the United States since the mid-1980s. Booth says the number has increased because human genes evolved to create a body designed to work, and societal pressures of today make human beings act in an incompatible way. In other words, our bodies are designed for a lot of strenuous activity … and we’re just sitting around. Booth cites research to back up his claims that inactivity is dangerous. In a recent study involving rats, Booth found that just two days of inactivity increased the amount of fat and the size of fat cells in the body. In a similar study, Booth discovered insulin sensitivity decreases when a body is inactive for just two days. Decreased insulin efficiency may be a precursor to diabetes and other related diseases. Both of these studies were published in The Journal of Physiology. Booth listed other grim problems associated with inactivity: Earlier death — The U.S. population dropped from first on the longevity list 20 years ago to 19th for women and 28th for men today. Earlier onset of adult, or type 2, diabetes — The Centers for Disease Control and Prevention predicts the number of type 2 diabetes cases will triple to 39 million by 2050. Onset of different types of cancer — Research has linked inactivity to breast cancer, colon cancer, and pancreatic cancer. "You should not be harming children, and this is harming children," says Booth. He says the increase in obesity is a crisis, and it is up to adults to make sure children are not put at risk for the health problems associated with inactivity. Booth recommends doctors start asking their patients about their activity levels in the same way they ask about drinking and smoking. He says physical activity levels can be monitored by a health professional to make sure chronic disease is prevented before it occurs. This article was reported by Ivanhoe.com, who offers Medical Alerts by e-mail every day of the week. To subscribe, go to: http://www.ivanhoe.com/newsalert/. SOURCE: American College of Sports Medicine 52nd Annual Conference in Nashville, Tenn., June 1-4, 2005 and Ivanhoe interview

Response:

Well, if only people would stop drinking soda, we would see a dramatic reduction in childhood obesity, my guess at least a 80% reduction.

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Americans are fat, and they will keep getting fatter unless they start getting more exercise. Biomedical researchers from the University of Missouri-Columbia predict that despite all the efforts to reverse the trend, every United States child will be considered obese by 2044. Every adult will be obese by 2058.

Some children go to bed hungry in the United States.

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To Harry palmer

Question:

- Hide quoted text — Show quoted text – The special present of each day bcomes more precious and meaningful for most after having cancer,  or some other possibly life threatening illness…. Oh yes! The sun is sunnier, the sky bluer, the flowers more beautiful and fragrant. Each good new day is valued as a gift. Friends and laughter all the more treasured.  We take more time to "stop and smell the roses" We do indeed. What we used to see as problems are hardly noticed any more! Life is full of good things. My daughter who had breast cancer and is still having follow up has wanted to move where it is warmer. She has decided now is the time and I concur. We will be flying to Florida next week to look at accomodations there. Whether she has a reocurrence of the cancer or not, she will be doing what she wants to do. Good for her – and you. But I hope that if/when you get there you’ll still come here. Mary eveline I second that,  will you be moving with her?  It’s such a long way away… but thinking about it Travel is so much easier now… and more accessible to every-one….  Sun and warmth… sounds very appealing at the moment… I rode out today and it was freezing… My ears really felt the wind !!!   will have to find something to put under my riding hat !!                                     pam xx

She has a sister who resides in Florida, so she will not be totally alone, and yes, I may start spending some winters down there.  I will probably keep my home place in Ohio as permanent residence It takes only a couple hours by plane, and if she needs me I will be there. I have a laptop I can take with me to keep in touch with everyone. eveline – Hide quoted text — Show quoted text –

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The special present of each day bcomes more precious and meaningful for most after having cancer,  or some other possibly life threatening illness….

Oh yes! The sun is sunnier, the sky bluer, the flowers more beautiful and fragrant. Each good new day is valued as a gift. Friends and laughter all the more treasured.  We take more time to "stop and smell the roses"

We do indeed. What we used to see as problems are hardly noticed any more! Life is full of good things. My daughter who had breast cancer and is still having follow up has wanted to move where it is warmer. She has decided now is the time and I concur. We will be flying to Florida next week to look at accomodations there. Whether she has a reocurrence of the cancer or not, she will be doing what she wants to do.

Good for her – and you. But I hope that if/when you get there you’ll still come here. Mary – Hide quoted text — Show quoted text – eveline

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– Hide quoted text — Show quoted text – The special present of each day bcomes more precious and meaningful for most after having cancer,  or some other possibly life threatening illness…. Oh yes! The sun is sunnier, the sky bluer, the flowers more beautiful and fragrant. Each good new day is valued as a gift. Friends and laughter all the more treasured.  We take more time to "stop and smell the roses" We do indeed. What we used to see as problems are hardly noticed any more! Life is full of good things. My daughter who had breast cancer and is still having follow up has wanted to move where it is warmer. She has decided now is the time and I concur. We will be flying to Florida next week to look at accomodations there. Whether she has a reocurrence of the cancer or not, she will be doing what she wants to do. Good for her – and you. But I hope that if/when you get there you’ll still come here. Mary eveline I second that,  will you be moving with her?  It’s such a long way

away… but thinking about it Travel is so much easier now… and more accessible to every-one….  Sun and warmth… sounds very appealing at the moment… I rode out today and it was freezing… My ears really felt the wind !!!   will have to find something to put under my riding hat !!                                     pam xx – Hide quoted text — Show quoted text –

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- Hide quoted text — Show quoted text – That reminds me of when I had a (benign) brain tumour removed. My family said that they opened me up and removed the smaller lump and still don’t know if it was the right one … they’d visit me in hospital and ‘talk’ to each other through my ears, i.e. there was nothing to stop anything … Small grandchildren came and counted my staples. A daughter said she’d brought the children then in came No 1 son and his wife (who lived in Scotland), they brought with them the scan of their first baby. I really enjoyed the fun of all that, at least they weren’t all moping and panicking and tearful. Like me, they had no option but to trust the surgeon. That trust was well founded. I remember asking him, when he telephoned to offer me an option of when to have it done, what was the risk. He said brain surgery was never risk free. I mused that driving a car is never risk free so I said "tomorrow please", and drove myself to the hospital after I put down the phone. After that a lumpectomy seemed like having a tooth out. There were similar festivities on that occasion too :-) Mary

The special present of each day bcomes more precious and meaningful for most after having cancer,  or some other possibly life threatening illness…. The sun is sunnier, the sky bluer, the flowers more beautiful and fragrant. Each good new day is valued as a gift. Friends and laughter all the more treasured.  We take more time to "stop and smell the roses" My daughter who had breast cancer and is still having follow up has wanted to move where it is warmer. She has decided now is the time and I concur. We will be flying to Florida next week to look at accomodations there. Whether she has a reocurrence of the cancer or not, she will be doing what she wants to do. eveline

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– Hide quoted text — Show quoted text –   Hi      call me cynical  or a realist… but there’s more to this persons post than appears…he refuses to give his wife’s name…   all is in the first person… different axes to grind…I’m sorry but my feelings are more with the person with bc…this seems to be secondary to him.. That was my feeling too although it seemed unkind to comment on it before now. Mary This is  a supportive, kind group of people here and maybe we were "taken in" by Harry.

I don’t know. However, I would rather see an outpooring of goodwill and support than suspicion and criticism of a new poster.

So would I, and I think we’ve all tried to do that. Maybe he is genuine and genuinely hesitates to identify his wife by name on this public forum.  Maybe his wife is a private person and he is respecting The only thing that gives me pause, is that he said she had cancer before a biopsy was done.  I don’t see how that type diagnoses would be possible without examining tissue removed.

I don’t know enough for that to leap out at me but I value your knowledge. Mary – Hide quoted text — Show quoted text – eveline

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To get back to the topic of this ng…I have been nick-named Baldrick   by my oh-so-sensitive family…must say I kinda like it…                   Pam xx

That reminds me of when I had a (benign) brain tumour removed. My family said that they opened me up and removed the smaller lump and still don’t know if it was the right one … they’d visit me in hospital and ‘talk’ to each other through my ears, i.e. there was nothing to stop anything … Small grandchildren came and counted my staples. A daughter said she’d brought the children then in came No 1 son and his wife (who lived in Scotland), they brought with them the scan of their first baby. I really enjoyed the fun of all that, at least they weren’t all moping and panicking and tearful. Like me, they had no option but to trust the surgeon. That trust was well founded. I remember asking him, when he telephoned to offer me an option of when to have it done, what was the risk. He said brain surgery was never risk free. I mused that driving a car is never risk free so I said "tomorrow please", and drove myself to the hospital after I put down the phone. After that a lumpectomy seemed like having a tooth out. There were similar festivities on that occasion too :-) Mary Mary

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– Hide quoted text — Show quoted text –   Hi      call me cynical  or a realist… but there’s more to this persons post than appears…he refuses to give his wife’s name…   all is in the first person… different axes to grind…I’m sorry but my feelings are more with the person with bc…this seems to be secondary to him.. That was my feeling too although it seemed unkind to comment on it before now. Mary This is  a supportive, kind group of people here and maybe we were "taken in" by Harry. However, I would rather see an outpooring of goodwill and support than suspicion and criticism of a new poster. Maybe he is genuine and genuinely hesitates to identify his wife by name on this public forum.  Maybe his wife is a private person and he is respecting The only thing that gives me pause, is that he said she had cancer before a biopsy was done.  I don’t see how that type diagnoses would be possible without examining tissue removed. eveline totally agree with all your sentiments, but just didn’t seem ‘right’  If

this is his real name then he’s identified his wife..name or no name..if it isn’t. then  her identity is safe anyway….  but that wasn’t the reason he gave… too traumatic????   then as you say  he was assuming that the diagnosis was the worst, before biopsy..While I know I for one was still trying to be positive up to the last moment… I did ask Bobby (husband ) to read the thread, in case I was being ‘orrible.  and he felt the same….. To get back to the topic of this ng…I have been nick-named Baldrick   by my oh-so-sensitive family…must say I kinda like it…                    Pam xx – Hide quoted text — Show quoted text –

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  Hi      call me cynical  or a realist… but there’s more to this persons post than appears…he refuses to give his wife’s name…   all is in the first person… different axes to grind…I’m sorry but my feelings are more with the person with bc…this seems to be secondary to him.. That was my feeling too although it seemed unkind to comment on it before now. Mary

This is  a supportive, kind group of people here and maybe we were "taken in" by Harry. However, I would rather see an outpooring of goodwill and support than suspicion and criticism of a new poster. Maybe he is genuine and genuinely hesitates to identify his wife by name on this public forum.  Maybe his wife is a private person and he is respecting The only thing that gives me pause, is that he said she had cancer before a biopsy was done.  I don’t see how that type diagnoses would be possible without examining tissue removed. eveline – Hide quoted text — Show quoted text –

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  Hi      call me cynical  or a realist… but there’s more to this persons post than appears…he refuses to give his wife’s name…   all is in the first person… different axes to grind…I’m sorry but my feelings are more with the person with bc…this seems to be secondary to him..

That was my feeling too although it seemed unkind to comment on it before now. Mary

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– Hide quoted text — Show quoted text – Yes, please stay if you can benefit more from this breast cancer support group.  I love the good old USA too, but I was born here, and know little else. I have heard complaints from some in the couutries with health coverage. Complaints about too long of waits for much needed treatments. I also know the inadequasies of our system in the states, with the insurance companies with too much power, the rich and the poor getting a better deal than the middle class. The rich can pay, the rest of us pay for the poor and the middle class get charged at a higher rate if they do not have insurance coverage to bargain for them. I think our medical expertise here is the best in the world, but the health system needs improvement I also think an open and honest discussion of the different systems is healthy and enlightening. I think the good and bad experiences being aired can only be an education, and no one should be offended.  We are discussing the merits of the health systems – not trashing any country. I agree. Mary

   Hi       call me cynical  or a realist… but there’s more to this persons post than appears…he refuses to give his wife’s name…   all is in the first person… different axes to grind…I’m sorry but my feelings are more with the person with bc…this seems to be secondary to him..more about trashing the health service of different countries….   just my humble opinion….ignore it if it offends….                             Pam   xx

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– Hide quoted text — Show quoted text – Yes, please stay if you can benefit more from this breast cancer support group.  I love the good old USA too, but I was born here, and know little else. I have heard complaints from some in the couutries with health coverage. Complaints about too long of waits for much needed treatments. I also know the inadequasies of our system in the states, with the insurance companies with too much power, the rich and the poor getting a better deal than the middle class. The rich can pay, the rest of us pay for the poor and the middle class get charged at a higher rate if they do not have insurance coverage to bargain for them. I think our medical expertise here is the best in the world, but the health system needs improvement I also think an open and honest discussion of the different systems is healthy and enlightening. I think the good and bad experiences being aired can only be an education, and no one should be offended.  We are discussing the merits of the health systems – not trashing any country.

I agree. Mary

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Yes, please stay if you can benefit more from this breast cancer support group.  I love the good old USA too, but I was born here, and know little else. I have heard complaints from some in the couutries with health coverage. Complaints about too long of waits for much needed treatments. I also know the inadequasies of our system in the states, with the insurance companies with too much power, the rich and the poor getting a better deal than the middle class. The rich can pay, the rest of us pay for the poor and the middle class get charged at a higher rate if they do not have insurance coverage to bargain for them. I think our medical expertise here is the best in the world, but the health system needs improvement I also think an open and honest discussion of the different systems is healthy and enlightening. I think the good and bad experiences being aired can only be an education, and no one should be offended.  We are discussing the merits of the health systems – not trashing any country. eveline

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core biopsy

Question:

Sounds like your doctor is right on target. Aspirating the cyst  and core biopsy is the only way to confirm it is a cyst and not cancer. Depending on your age ( the younger you are ) the less likely it is cancer but better to be safe then sorry. Good luck and let us know how it goes. —

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Can anyone please advise me ? I cancelled my appt. due to getting a migraine headache w/ vomiting. This from worrying about the procedure and the possible outcome. Does breast  c/a ever show up or grow on the muscle wall of the breast? I’m searching for answers . Please help.. Jennifer

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Can anyone please advise me ? I cancelled my appt. due to getting a migraine headache w/ vomiting. This from worrying about the procedure and the possible outcome. Does breast  c/a ever show up or grow on the muscle wall of the breast? I’m searching for answers . Please help.. Jennifer

Well, most breast cancer grows in the ducts or lobes, but it can be close to the chest wall, so that doesn’t rule it out. Don’t worry about the procedure, this is the normal approach for a suspect mass deep inside the breast, there is really no other way of locating it.  The alternative to a core biopsy would be a surgical biopsy, which essentially means go straight in and remove it regardless of whether it is malignant or not. Core biopsy is not a very painful procedure, although it can involve some discomfort.  Something on the level of getting your teeth drilled I think.  The site is anaesthetised for the process, but there will be some bruising afterwards. Everyone worries about the possibility that their condition might be malignant, this also is normal. But the only way to relieve the worry is to find out, which means a biopsy.  Ducking the issue only prolongs the agony. Most lumps aren’t malignant, but occasionally part of a benign growth can become malignant later on.  Your doctor obviously thinks this one is suspicious enough to bear further investigation.  I hope it turns out benign. — Tim Jackson -Who needs to pay Microsoft?  Free Open Source Software- www.mozilla.org       FIREFOX Web Browser,  THUNDERBIRD Email/News www.openoffice.org      Office Suite

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Hello, I have fibrocystic breasts. I have had a complex cyst attached to a sympol( sp?)cyst  for over 7 mos. now. Yesterday I had a mammogram on the right breast only. Then the ultrasound.Friday I am scheduled for a cyst aspiration and then a core biopsy. The Dr. seemed somewhat confused ( my term ) for the attached complex cyst. It seems it has grown slightly w / in the last 7 mos.But as she moved the doppler , the complex cyst changed apperance and looks more like a solid growth attached to the sympol cyst. It is on the muscle wall . She stated that she would use ultrasound guidence and go in at an angle. Is this normal ? Also I am scared. Is it normal to have two types of cysts together and require a cyst aspiration along w/ a core biopsy ? Please advise. I look forward to any opinion . Thank you , Jennifer Breast cancer doesn’t grow on the muscle wall does it ? Thanks again .

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yesterday . The solid growth or complex cyst ( Dr. is unsure) is located up against a sympol cyst. I was told that w/in the 7 mos. + since my last mammogram and ultrasound that the complex cyst had grown slightly.( strange dimentions)  The Dr. stated that  papillomasarcoma sometimes mimicks this. Papillomasarcoma bathes itself in the sympol cyst. The odd thing is a yr. ago I had a sympol cyst locatated in the very spot this one is in.It was aspirated.Fluid drawn and discarded.Does the cyst wall also need to be removed ? Mine wasn’t. I wonder if that’s why it came back ?? Also, I have had a sinus infection this week. Should I d/c the appt. due to that and reschedule ? I wondered if that would make a difference in the pathology? Thank you for your time and opinion. It means so much . Jennifer

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– Hide quoted text — Show quoted text – Hi, last minute.The words of advice you all have given resinated in my head , so off I went. The material that was taken or removed was slightly chunky. The fluid was light pink. The Dr. said that there was some blood. She wondered if she had gone too deep ? The sympol cyst and complex cyst are gone. The Dr. did something odd tho’. She placed a small staple like thingy in my right breast where these cysts were growing. She stated that it would be for future reference in case the cells came back abnormal and I needed more tissue removed. On Friday I should have the results. I’ll post them here. I thank you all . Has anyone ever heard of the small staples being placed in the breast and what info can you add re: that? Thank you for helping me to and from my appt. The words of incouragement meant so much. I consider that quite an act of friendship . I look forward to hearing from you all and I’ll be in touch. God Bless, Jenn

   keeping evrything crossed for you                    pam xx

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She placed a small staple like thingy in my right breast where these cysts were growing. She stated that it would be for future reference in case the cells came back abnormal and I needed more tissue removed. On Friday I should have the results. I’ll post them here. I thank you all . Has anyone ever heard of the small staples being placed in the breast and what info can you add re: that?

It’s a marker, a signpost to future surgeons who may need to travel the area, to show where the sample had been taken from. Good luck with your results. — Tim Jackson -Who needs to pay Microsoft?  Free Open Source Software- www.mozilla.org       FIREFOX Web Browser,  THUNDERBIRD Email/News www.openoffice.org      Office Suite

Response:

Best of luck with your biopsy, positive thoughts your way. Alex PS I’m glad you didn’t back out! —

– Hide quoted text — Show quoted text – Hi, last minute.The words of advice you all have given resinated in my head , so off I went. The material that was taken or removed was slightly chunky. The fluid was light pink. The Dr. said that there was some blood. She wondered if she had gone too deep ? The sympol cyst and complex cyst are gone. The Dr. did something odd tho’. She placed a small staple like thingy in my right breast where these cysts were growing. She stated that it would be for future reference in case the cells came back abnormal and I needed more tissue removed. On Friday I should have the results. I’ll post them here. I thank you all . Has anyone ever heard of the small staples being placed in the breast and what info can you add re: that? Thank you for helping me to and from my appt. The words of incouragement meant so much. I consider that quite an act of friendship . I look forward to hearing from you all and I’ll be in touch. God Bless, Jenn

Response:

Hi, last minute.The words of advice you all have given resinated in my head , so off I went. The material that was taken or removed was slightly chunky. The fluid was light pink. The Dr. said that there was some blood. She wondered if she had gone too deep ? The sympol cyst and complex cyst are gone. The Dr. did something odd tho’. She placed a small staple like thingy in my right breast where these cysts were growing. She stated that it would be for future reference in case the cells came back abnormal and I needed more tissue removed. On Friday I should have the results. I’ll post them here. I thank you all . Has anyone ever heard of the small staples being placed in the breast and what info can you add re: that? Thank you for helping me to and from my appt. The words of incouragement meant so much. I consider that quite an act of friendship . I look forward to hearing from you all and I’ll be in touch. God Bless, Jenn

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Thank you for your time and opinion. I will go ahead with the procedure – Hide quoted text — Show quoted text – A cold or virus will make no difference in the pathology. Good luck, alex — yesterday . The solid growth or complex cyst ( Dr. is unsure) is located up against a sympol cyst. I was told that w/in the 7 mos. + since my last mammogram and ultrasound that the complex cyst had grown slightly.( strange dimentions)  The Dr. stated that papillomasarcoma sometimes mimicks this. Papillomasarcoma bathes itself in the sympol cyst. The odd thing is a yr. ago I had a sympol cyst locatated in the very spot this one is in.It was aspirated.Fluid drawn and discarded.Does the cyst wall also need to be removed ? Mine wasn’t. I wonder if that’s why it came back ?? Also, I have had a sinus infection this week. Should I d/c the appt. due to that and reschedule ? I wondered if that would make a difference in the pathology? Thank you for your time and opinion. It means so much . Jennifer

Response:

A cold or virus will make no difference in the pathology. Good luck, alex —

– Hide quoted text — Show quoted text – yesterday . The solid growth or complex cyst ( Dr. is unsure) is located up against a sympol cyst. I was told that w/in the 7 mos. + since my last mammogram and ultrasound that the complex cyst had grown slightly.( strange dimentions)  The Dr. stated that  papillomasarcoma sometimes mimicks this. Papillomasarcoma bathes itself in the sympol cyst. The odd thing is a yr. ago I had a sympol cyst locatated in the very spot this one is in.It was aspirated.Fluid drawn and discarded.Does the cyst wall also need to be removed ? Mine wasn’t. I wonder if that’s why it came back ?? Also, I have had a sinus infection this week. Should I d/c the appt. due to that and reschedule ? I wondered if that would make a difference in the pathology? Thank you for your time and opinion. It means so much . Jennifer

Response:

yesterday . The solid growth or complex cyst ( Dr. is unsure) is located up against a sympol cyst. I was told that w/in the 7 mos. + since my last mammogram and ultrasound that the complex cyst had grown slightly.( strange dimentions)  The Dr. stated that  papillomasarcoma sometimes mimicks this. Papillomasarcoma bathes itself in the sympol cyst. The odd thing is a yr. ago I had a sympol cyst locatated in the very spot this one is in.It was aspirated.Fluid drawn and discarded.Does the cyst wall also need to be removed ? Mine wasn’t. I wonder if that’s why it came back ??

  Surgical removal of the cyst involves a lot more complication and risk of infection etc. than aspiration.  I think after aspiration a cyst may disappear or it may come back, if it keeps coming back then surgery may be the answer, but either way it isn’t something to fret over.  But that’s nothing to do with cancer, and isn’t specific to breasts either. There is potentially a progression through benign conditions, ending up with a malignant one.  Breast cancer can happen like that, the abnormal cells in a benign lump may have some but not all of the changes to make them cancerous, and some further changes may occur later in part of the lump to result in a malignancy within or attached to it.  So one has to keep a regular eye on abnormalities (eg annual mammogram), even if they have been stable (or tested negative) for quite along time.  I think this is what the doctors want to check for. Also, I have had a sinus infection this week. Should I d/c the appt. due to that and reschedule ? I wondered if that would make a difference in the pathology? Thank you for your time and opinion. It means so much

  I don’t think so, but if in any doubt at all call the hospital and ask. They are the experts, let them call the shots. Tim

Response:

{OT}? I feel fabulous

Question:

Chakolate <chakolateDeathToSpamm…@allvantage.com> wrote in news:Xns95EF9678976F6chakolatehotmailcom@130.133.1.4: – Hide quoted text — Show quoted text -> It’s a supplement, not a medication, so no prescription is needed and > since it’s non-proprietary, no big pharma is holding a patent and > advertising the hell out of it.   > I think of it a lot like zinc is for colds.  It’s been known for > decades that zinc will help a cold, but it didn’t get to be common > knowledge because no one was pushing it.   > So if no pharma is telling doctors to prescribe 5-HTP, they won’t > mention it.  Most probably don’t even know about it.  And doctors > don’t really care about anything that doesn’t require a prescription, > anyway.   >> Where have you first heard about 5-HTP? > On another newsgroup, (don’t ask which one) and then I went and > medlined 5- HTP and depression.  

Thanks Chak! aphrodite

Response:

On 31 Jan 2005 20:47:35 GMT, Chakolate <chakolateDeathToSpamm…@allvantage.com> wrote: >It’s a supplement, not a medication, so no prescription is needed and since >it’s non-proprietary, no big pharma is holding a patent and advertising the >hell out of it.  

Lots of medications are sold OTC and do not require a prescription. So what’s the difference? [ I'm in Canada, and here even a simple multivitamin pill is considered a drug, and regulated and labelled as such. Any nutritional supplement not a drug is a food. Zinc is not a food. >I think of it a lot like zinc is for colds.  It's been known for decades >that zinc will help a cold, but it didn't get to be common knowledge >because no one was pushing it.  

Oh it's been pushed, hasn't it? I've seen ads. >So if no pharma is telling doctors to prescribe 5-HTP, they won't mention >it.  Most probably don't even know about it.  And doctors don't really care >about anything that doesn't require a prescription, anyway.  

Pharma is telling doctors to suggest patients take vitamins, and using advertising to tell to consumers to do so too. Wyeth is one example. There is as yet no scientific evidence that taking a daily vitamin pill will do diddlely, ( except perhaps Vitamin D in winter months in high latitutdes) ) unless you are very sick. Read the provided medical journal abstract carefully. http://www.centrum.com/ also note the footnote. >*These statements have not been evaluated by the Food and Drug Administration. >This product is not intended to diagnose, treat, cure, or prevent any disease. >> Where have you first heard about 5-HTP? >On another newsgroup, (don't ask which one) and then I went and medlined 5- >HTP and depression.  

Which is great, and I hope this works out for you  -- but calling a drug a 'supplement' no matter what the current regulations say, is not correct, and hits several of my hot buttons. btw as Harry will no doubt be reporting shortly Wyeth just released their year end report today, Premain and Prempro sales went down another 31% over last year. Sales of Consumer products such as Vitamin pills went up 6%. >Chakolate

Kathryn

Response:

- Hide quoted text -- Show quoted text -Chakolate wrote: > This is long, and it's all about me, but if you're good and you read to the > end, I'll give you a reward.  Promise.  :-) > A few weeks ago I stopped taking my SSRI, Zoloft.  I just couldn't afford > to refill the scrip.  I'd been considering taking 5-HTP instead.  It's an > OTC supplement which is a serotonin precursor, claimed to work as well as > an SSRI but without a prescription, non-proprietary (and therefore much > cheaper) and no sexual side effects.   > The studies I read gave 300-900 mg/day as doses, but I found one that got > good results with just 150 mg/day, so I decided to start with that.  All > the articles said results were usually seen within two weeks.  The studies > also said the only problem encountered was serotonin poisoning, with the > highest doses.  I wasn't too worried about that, because I'd experienced > the effect of too much serotonin once when my SSRI dose was increased.  I > knew what to look for.   > Okay, it came last Tuesday.  The Saturday before, I spent the day literally > holding myself in from killing Tristan.  He's four, and perfectly normal in > his response to everything: NO.  He did survive, but it was a close thing. >  I spend much of Monday crying because Johnny Carson died.  Now, I did like > Johnny, and I'm sorry he's dead, but I feel pretty sure my crying jag was > only partly because of him.  If AT&T had told me to reach out and touch > someone I would have cried.  A friend called me, and I cried because I was > so touched by her sweetness.  All last week I had almost decided to give up > on the Master's degree.  

You mentioned in a post that you'd had a bad week.  I meant to follow up on that, but somehow it slipped off my queue. - Hide quoted text -- Show quoted text -> On top of all that, I felt really stupid and whiny, feeling I had no right > to be complaining when people all around the world have it so much worse > than I do.   > Tuesday I started taking the 5-HTP.  50 mg, three times a day.  By > Saturday, when I went to see Tristan, I could really see the difference.   > He said 'NO' and instead of snarling at him, I stuck my tongue out at him.   > He said he didn't want to get dressed, and instead of holding him down and > forcing him, I teased him about going to the park naked.  I got him dressed > while he was thinking over the wonderful silliness of going to the park in > January, naked.  I was patience personified.   > This morning when I woke up, I felt *fabulous*.  Typed words cannot put > enough 'fab' into that 'fabulous'.  I was singing in the shower, and I made > up my mind to start sitting in on some classes at school to help me prepare > (once again) for the Master's Exam.  I know I can do it.

Fantastic that you're feeling so good!  And I'm glad you're back on track for the Master's Exam.  I know you can do it too. It's astonishing that it only took a few days to turn your mood around, since SSRIs can take up to a few weeks.  How long had you been off Zoloft? > (Tristan's mummy asked me why, if 5-HTP was so much better than SSRIs, > wasn't it used more.  I gave her a shortened version of asm's zeitgeist > about the medical profession.) > Anyway, I'm feeling much, much better.   > Okay, and now for those of you who slogged through that whole thing, here's > your reward:

I didn't need the reward, but these were funny!  Especially Calvin's dad!  BTDT.  Every day.  Several times. I'm really glad you're feeling better! FurPaw PS - Love your sig line! - Hide quoted text -- Show quoted text -> Calvin and Hobbes, pertinent to midlifers: > http://www.ucomics.com/calvinandhobbes/1994/01/31/ > and Rose Is Rose, pertinent to cat lovers: > http://www.unitedmedia.com/comics/roseisrose/archive/roseisrose- > 20050131.html > or > http://tinyurl.com/4osef > Chakolate, an advanced old woman > -- > Time and trouble will tame an advanced young woman, but an advanced old > woman is uncontrollable by any earthly force. >   --Dorothy L. Sayers

-- Sleep is the best meditation. - Dalai Lama To reply, unleash the dog

Response:

"kathryn" <droz...@shaw.ca> wrote in message

news:tp8tv0ln8jdhut6jj0r0odkknncthpr2tl@4ax.com... - Hide quoted text -- Show quoted text -> On 31 Jan 2005 20:47:35 GMT, Chakolate > <chakolateDeathToSpamm...@allvantage.com> wrote: > >It's a supplement, not a medication, so no prescription is needed and since > >it's non-proprietary, no big pharma is holding a patent and advertising the > >hell out of it. > Lots of medications are sold OTC and do not require a prescription. So > what's the difference? > [ I'm in Canada, and here even a simple multivitamin pill is > considered a drug, and regulated and labelled as such. Any nutritional > supplement not a drug is a food. > Zinc is not a food. > >I think of it a lot like zinc is for colds.  It's been known for decades > >that zinc will help a cold, but it didn't get to be common knowledge > >because no one was pushing it. > Oh it's been pushed, hasn't it? I've seen ads.

Yes, but not till recently - in the last few years. - Hide quoted text -- Show quoted text -> >So if no pharma is telling doctors to prescribe 5-HTP, they won't mention > >it.  Most probably don't even know about it.  And doctors don't really care > >about anything that doesn't require a prescription, anyway. > Pharma is telling doctors to suggest patients take vitamins, and using > advertising to tell to consumers to do so too. Wyeth is one example. > There is as yet no scientific evidence that taking a daily vitamin > pill will do diddlely, ( except perhaps Vitamin D in winter months in > high latitutdes) ) unless you are very sick. Read the provided medical > journal abstract carefully. > http://www.centrum.com/ > also note the footnote. > >*These statements have not been evaluated by the Food and Drug Administration. > >This product is not intended to diagnose, treat, cure, or prevent any

disease. All of the supplements I've ever bought have this disclaimer on them - at least as far as I've noticed. > >> Where have you first heard about 5-HTP? > >On another newsgroup, (don't ask which one) and then I went and medlined 5- > >HTP and depression. > Which is great, and I hope this works out for you  -- but calling a > drug a 'supplement' no matter what the current regulations say, is not > correct, and hits several of my hot buttons.

I assume the Chakolate referred to it that way, since that's how it's regulated/classified (AFAIK) in the States. Yes?  No? Cathy - Hide quoted text -- Show quoted text -> btw as Harry will no doubt be reporting shortly Wyeth just released > their year end report today, Premain and Prempro sales went down > another 31% over last year. Sales of Consumer products such as Vitamin > pills went up 6%. > >Chakolate > Kathryn

Response:

Chris Malcolm <c...@holyrood.ed.ac.uk> wrote in news:3695p5F4vncphU1 @individual.net: > The same goes for hormones, and medical attempts to cure "hormone > imbalances" based on the "soup model". If you're lucky it will work, > but it will sometimes not only fail to work as intended but have > bizarre and dangerous effects.

I agree. I'm sceptical about SSRIs now as well. It's been said that they are dangerous for children (suicide and other problems), so I don't see the reason why they should be safe for adults either. I'm saying this from my point of view, others may disagree because I've heard some people say that SSRIs have saved their life. aphrodite

Response:

terr...@gmail.com wrote: > kathryn wrote: >> On Mon, 31 Jan 2005 17:33:30 -0700, FurPaw <furrealpaw...@gmail.com> >> wrote: >> I went over and looked at the website for the product Chak stated she >> purchased. Each pill contains 5 mg Niacin, 5 mg Vitamin B6, 25 mg >> magnesium, 50 mg Valerian root, in addition to the 50 mg 5 - HTP. The >> recommended dosage is twice daily. Why so much B6? Apparently it's a >> precursor for 5 - HTP, no doubt there is a limit to how much 5 - HTP >> can be sold in a product and still get away with being regulated as a >> supplement. > 5 mg of B-6 can be neurotoxic. Be careful, Chak. If you start noticing > pins and needles sensations you may need to switch to another kind of > this stuff.

I found this 5mg figure rather surprising, so I searched both Medline and google/scholar. The lowest dosage of vit B6 (pyridoxine) I can find associated with the suggestion of possible neuropathic damage is 200mg, and then only if taken for a long of time. The cautious EC document "Opinion of the Scientific Committee on Food on the Tolerable Upper Intake Level of Vitamin B" reviews the evidence and suggests that with safety margins in place a safe upper limit of supplementation is 25mg/day. <www.alliance-natural-health.org/ _docs/ANHwebsiteDoc_25.pdf> Can anyone supply a ref for 5mg/day being neurotoxic? -- Chris Malcolm c...@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205 IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK [http://www.dai.ed.ac.uk/homes/cam/]

Response:

FurPaw wrote: > kathryn wrote: > > On Mon, 31 Jan 2005 17:33:30 -0700, FurPaw

<furrealpaw…@gmail.com> – Hide quoted text — Show quoted text -> > wrote: > >>Some zinc preparations have been advertised in the past ten years or > >>so, I’d guess.  Not nearly to the extent that OTC decongestants, > >>antihistamines and other combination nostrums are, though.  But I’d > >>be surprised if many doctors are advising patients to take zinc. > >>I’ve gotten, "Sure if it makes you feel better" (snicker > >>snicker)-type answers from doctors I’ve asked about zinc re colds. > > Check out the Linus Pauling Institute website, I didn’t quite hear a > > <snicker>…but…. > > http://lpi.oregonstate.edu/infocenter/minerals/zinc/index.html > >>Despite numerous well-controlled clinical trials, the efficacy of zinc lozenges in > >>treating common cold symptoms remains questionable. > I haven’t found any studies that both identify the type of virus > (rhino or other) and administer the zinc lozenges within an hour of > onset of symptoms – it’s usually within 24 hours.

I doubt that these kinds of studies will ever be done. How many people would even be aware of these "symptoms" within an hour of their onset? How many people would be rushing off to a doctor or a lab to have themselves tested for identification of a cold virus? – Hide quoted text — Show quoted text -> IME – we have an n of 2 here, me and Hubster, with no control group > – zinc gluconate works pretty well at both reducing the severity and > duration of cold symptoms IF it’s started within ONE HOUR of onset > of first symptoms – scratchy throat, twitchy nose.  For most colds. >   For a few colds, it has no effect.  The difference for me is > pretty dramatic. This is based on about ten years’ experience with > Cold-Eeze.  If these factors were accounted for in the research, > perhaps there’d be less variability in results. > Yes, yes, yes, I know about false alarms (it was an allergic > response that went away on its own, not a cold), varying severity of > colds regardless of medications, etc. etc.  I may be pouring my > money down a rathole by taking it.  Maybe it’s all placebo effect. > But while I average 2-3 very mild colds a year, I rarely get a > severe cold.  In fact, it’s been several years since I’ve had a "bad > cold."  This is quite different from my experience with colds before > I began taking Cold-Eeze at cold onset – I’d get one or two > miserable colds a year. > FWIW. > FurPaw > — > Sleep is the best meditation. – Dalai Lama > To reply, unleash the dog

Response:

aphrodite <fatamorg…@dodgeit.com> wrote: > FurPaw <furrealpaw…@gmail.com> wrote in > news:nZCdnQ8qls-4WGPcRVn-sQ@comcast.com: >> It’s astonishing that it only took a few days to turn your mood >> around, since SSRIs can take up to a few weeks.  How long had you >> been off Zoloft? > Yes, that’s what I thought as well. When I started taking Paxil it > only started kicking in after about a month or two.

It depends how it works. It’s possible to shift a persistent depression in less than 24 hours, e.g. it sometimes happens with jet lag on a long flight, and it sometimes happens if the depressed person is caught in a very frightening emergency, such as a car accident or a fire. In fact what is puzzling is why the SSRIs and most of the other prescription antidepressants take so long. If they worked the way those who first invented them intended them to work, they’d act very much faster. AFAIK nobody yet knows why in practice they do take as long as they usually do. Another sudden mood change oddity is that sometimes stopping a high-dose SSRI suddenly can switch a patient within 24 hours out of a long-standing persistent depression. Psychiatrists sometimes try this when all else has failed. The reason for the 24 hours rather than (say) an hour or few, as one might expect on the basis of blood levels and half-lives, is that it may need to get caught up in the circadian dopamine cycle to become effective. It’s possible that some of these odd effects are due to the body’s own mood control machinery working to resist the effect of the SSRI. My own suspicion is that the SSRIs happen to work by increasing what is in effect the gain of the mood control system (I say (in effect" because what seems to be the gain is an amalgam of many effects of many interacting control systems). It’s not how they’re meant to work, but it does explain some otherwise puzzling effects. The problem is that many researchers into antidepressants think that what they’re doing is altering the proportions of chemicals in a mixture which is off-balance. In fact they often talk about a "chemical imbalance in the brain". That’s what I call the "soup model of human biochemistry", where the job of the doc is to add more salt to the soup if tests show there isn’t enough. In fact what displays as the "chemical imbalance" is actually the current equilibrium of a complex dynamic feedback control process, and what adding some "salt" to the mix is actually doing is throwing a spanner into the running machinery. Hence the odd and sometimes paradoxical effects of mood-affecting drugs. The same goes for hormones, and medical attempts to cure "hormone imbalances" based on the "soup model". If you’re lucky it will work, but it will sometimes not only fail to work as intended but have bizarre and dangerous effects. — Chris Malcolm c…@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205 IPAB,  Informatics,  JCMB, King’s Buildings, Edinburgh, EH9 3JZ, UK [http://www.dai.ed.ac.uk/homes/cam/]

Response:

kathryn <droz…@shaw.ca> wrote in news:hsmtv09t5aknlr2k4fg8mavsb5iii7hva5@4ax.com: – Hide quoted text — Show quoted text -> On Mon, 31 Jan 2005 17:33:30 -0700, FurPaw <furrealpaw…@gmail.com> > wrote: >>kathryn wrote: >>> On 31 Jan 2005 20:47:35 GMT, Chakolate >>> <chakolateDeathToSpamm…@allvantage.com> wrote: >>>>It’s a supplement, not a medication, so no prescription is needed >>>>and since it’s non-proprietary, no big pharma is holding a patent >>>>and advertising the hell out of it.   >>> Lots of medications are sold OTC and do not require a prescription. >>> So what’s the difference? >>> [ I’m in Canada, and here even a simple multivitamin pill is >>> considered a drug, and regulated and labelled as such. Any >>> nutritional supplement not a drug is a food. >>> Zinc is not a food. >>Then again, one could argue that foods contain drugs, like zinc, >>amino acids, vitamins, and so forth. >>>>I think of it a lot like zinc is for colds.  It’s been known for >>>>decades that zinc will help a cold, but it didn’t get to be common >>>>knowledge because no one was pushing it.   >>> Oh it’s been pushed, hasn’t it? I’ve seen ads. >>Some zinc preparations have been advertised in the past ten years or >>so, I’d guess.  Not nearly to the extent that OTC decongestants, >>antihistamines and other combination nostrums are, though.  But I’d be >>surprised if many doctors are advising patients to take zinc. I’ve >>gotten, "Sure if it makes you feel better" (snicker snicker)-type >>answers from doctors I’ve asked about zinc re colds. > Check out the Linus Pauling Institute website, I didn’t quite hear a > <snicker>…but…. > http://lpi.oregonstate.edu/infocenter/minerals/zinc/index.html >>Despite numerous well-controlled clinical trials, the efficacy of zinc >>lozenges in treating common cold symptoms remains questionable. >>>>So if no pharma don’t even knowis telling doctors to prescribe >>>>5-HTP, they won’t mention it.  Most probably   about it.  And >>>>doctors don’t really care about anything that doesn’t require a >>>>prescription, anyway.   >>Not always so.  I’ve had doctors recommend iron, folic acid, Vit. >>B-12, omega-3 supplements, aspirin, hydrogen peroxide, Neosporin,  and >>ibuprofen, among others.  But most I’ve had seem to be more likely to >>reach for a prescription pad. >>> Pharma is telling doctors to suggest patients take vitamins, and >>> using advertising to tell to consumers to do so too. >>This has been going on for a long time. >>> Wyeth is one example. >>> There is as yet no scientific evidence that taking a daily vitamin >>> pill will do diddlely, ( except perhaps Vitamin D in winter months >>> in high latitutdes) ) unless you are very sick. Read the provided >>> medical journal abstract carefully. >>> http://www.centrum.com/ >>Actually this is what is on centrum.com: >><centrum> >>The report states, "Most people do not consume an optimal amount of >>all vitamins by diet alone" and recommends "all adults should take >>one multivitamin daily." In fact, "Recent evidence has shown that >>suboptimal levels of vitamins, even well above those causing >>deficiency syndromes, are risk factors for chronic diseases." >>Consequently, "A large proportion of the general population is >>apparently at increased risk." >>To help address this vitamin deficiency problem, the report goes on >>to say, "We recommend multivitamins, rather than individual >>vitamins, because multivitamins are simpler to take

I have a lump

Question:

Breast cancer is teenagers is rare….probably 1-2 cases world wide each year if they many. A teenager just doesn’t have the right combination for cancer to grow. Your doc is doing the right thing, lumps are very common in teenagers but not cancer. My 20 year old daughter is at very high risk for breast cancer and they don’t even want to see her at the high risk clinic until age 25.

Response:

I am sure he will do whatever needs to be sure it is nothing malignant. Many cysts are not and some even disappear with time.  Some even turn out to be filled with fluid.  Ultrasound is painless and very quick procedure.

– Hide quoted text — Show quoted text – writes: How sure can the doctor be certain that it is a cyst, and not a cancerous one? The doctor can tell by the way it feels, generally.  Also – it’s extraordinarily rare for a teenager to have breast cancer.  I was 43 when I was diagnosed, and I felt like a kid next to the other patients I was around – generally it’s women older than me who get it.  I would try to not worry about it – but certainly ask your doctor these same questions (how does he/she know it’s a cyst, etc).  The ultrasound will also help make your doctor sure – my understanding is a cyst looks a certain way, and the doc can identify that. Sue – DivaofDVC   aka WDW1972 DVC ‘97   OKW, Beach Club, Vero Beach, & Hilton Head

Response:

writes: How sure can the doctor be certain that it is a cyst, and not a cancerous one?

The doctor can tell by the way it feels, generally.  Also – it’s extraordinarily rare for a teenager to have breast cancer.  I was 43 when I was diagnosed, and I felt like a kid next to the other patients I was around – generally it’s women older than me who get it.  I would try to not worry about it – but certainly ask your doctor these same questions (how does he/she know it’s a cyst, etc).  The ultrasound will also help make your doctor sure – my understanding is a cyst looks a certain way, and the doc can identify that. Sue – DivaofDVC   aka WDW1972 DVC ‘97   OKW, Beach Club, Vero Beach, & Hilton Head

Response:

I am only 14 years old and I found a lump in my right breast, just behind the nipple about the size of a wallnut.   I discovered when I suddenly started to have pain and redness around the nipple area.  I told my parents my problem and they took me to our family doctor.  The doctor prescribed me antiboitics, and told me to return if the lump is still there.  After finishing my anitbiotics for one week I went to see the doctor again, she told me that the lump is most likely a cyst.  Now I am waiting for ultrasound appointment.  Is there anyone in this group that can tell me what’s going on.  How sure can the doctor be certain that it is a cyst, and not a cancerous one?

Response:

How do I tell them?

Question:

My solution won’t work for everyone, but here is what I did.  I knew from living life that people will gossip and info will get distorted just from one telling to the next.  I wanted neither to have people tip toe around me because of the b.c., nor to have people write me off as too ill to return.  The only way to have any control over the truth was to tell everyone myself. I sent an e-mail to my bosses, my peers, and every one in my supervisory chain.  They all had the same info and it came from me.  And they all learned something about b.c., to their own benefits and their families’.  I got lots of positive feedback for that approach:  people said they learned a lot, they were glad I relieved them of the burden of figuring out how to handle the topic around me, and  they were very generous in their help to me and my husband.  I also sent a similar e-mail/snail mail to friends and family.   tk

Response:

What do I say to my co-workers?  Do I tell them one by one?  Just blurt it out?  Tell a group at a time?  I never liked to talk about anything personal at work and don’t know what to say.  Maybe I don’t have to say anything. What have you done in this situation? — Kathy aka smiley In God We Trust hi kathy- this is a problem i’ve had for some time now.  i still haven’t figured out the "right" way to deal with it.  so far i’ve been going on the "need to know" theory.  if you need to know about my condition, then i tell you in a very matter of fact way with minimal details and only as much discussion as you want.  early on, i told alot of people and i found it awkward.  people started treating me differently.  i’m 38 years old and late stage 4, but you’d really never know i’m even sick just looking at me.  i’m doing hormonal therapy and so have kept most of my hair.  the bruises on my arms and holes in my veins raise some eyebrows here and there, but nobody asks what they are.  i can pass as healthy and usually do just that.  but i am slightly disabled due to multiple bone mets and can’t do all the things that i look like i should be able to do.  it makes it difficult because if someone doesn’t know, but sees me struggling with walking or lifting something, they just think i’m lazy or a baby.  but if i tell them, they seem to get frieked out because of the serioiusness of my illness. i have often told "white lies" – i have a bad back, or bad hip, or whatever it is that’s bothering me that they noticed.  it’s not untrue, and explains my disability, without making people uncomfortable.  occasionally it backfires when the person will ask what’s wrong with my back, or start in on a rant about their own back problems etc… on the flipside, i feel as another poster wrote, that bc should come out of the closet so to speak, and if people are uncomfortable with it, perhaps i can act as a positive example of life with late stage bc and help disipate some of the fear and anxiety most people have about serious illness. it’s something my boyfriend and i argue about.  i feel in my gut that i shouldn’t have to hide it, or lie about it.  he feels that i should keep my mouth shut and don’t tell anyone because it makes them "uncomfortable". so, for me the jury is still out.  i guess in the workplace, some people need to know and gossip is everywhere, so eventually everyone will know anyway.  if it were me, i would take it as it comes.  tell my boss, because he/she needs to know.  beyond that, do whatever feels right. i hope your battle with this beast is short and successful. happy holidays and best for your new year! :) -christina

Response:

  What do I say to my co-workers?  Do I tell them one by one?  Just blurt it out?  Tell a group at a time?  I never liked to talk about anything personal at work and don’t know what to say.  Maybe I don’t have to say anything.  What have you done in this situation?   —   Kathy   aka smiley   In God We Trust   Difficult to answer without knowing your work environment.  In most offices if you tell your boss and one or two of your close friends, and make it clear it’s not a secret, most people will know by the end of the day!

Response:

What do I say to my co-workers?  Do I tell them one by one?  Just blurt it out?  Tell a group at a time?  I never liked to talk about anything personal at work and don’t know what to say.  Maybe I don’t have to say anything.  What have you done in this situation?

I just told people, as it came up, in as matter-of-fact a way as possible.  For example, I had to tell people I’d be off work for a while for the surgery.  When I told them that I’d be off (such as to plan coverage or progress on projects while I was gone), I’d simply tell them why. Personally and self-interested-ly, I looked at this in part as an educational thing.  Lots of women get breast cancer.  Many don’t want to admit it.  Consequently, the frequency of breast cancer doesn’t have its appropriate impact (encouraging others to keep up on mammograms & the like). While I’m not commonly very self-revealing, this didn’t seem so — it was just an objective fact.  However, my co-workers and workplace have a strong history of being supportive of people with health problems in general, so there was essentially no risk associated with my telling people. Ann T.

Response:

What do I say to my co-workers?  Do I tell them one by one?  Just blurt it out?  Tell a group at a time?  I never liked to talk about anything personal at work and don’t know what to say.  Maybe I don’t have to say anything.  What have you done in this situation? — Kathy aka smiley In God We Trust

Response:

New post breast cancer drug protocol

Question:

Boy, do I like this new google groups thing. The messages show up instantly. Yes, apparently this drug has a serious effect on bone – in keeping with the direct correlation between done density and breast cancer risk/incidence. The raw numbers in the Lancet study are less than overwhelming – 76 fewer cases over a 5 year period  - 575 vs 651 with more fractures (numbers not specified in the abstract) in the medicated group.

Response:

Terri <terr…@verizon.net> wrote in news:F_Xtd.3549$E_6.1727@trnddc04: > See: > http://www.thelancet.com/journal/journal.isa > Note that the study was funded by the drug company producing the new > drug and that 6 of the researchers were paid by them.

I got ‘unknown page’ from this link.   Chakolate — Progress isn’t made by early risers. It’s made by lazy men trying to find easier ways to do something.   –Robert Heinlein

Response:

On 9 Dec 2004 17:38:01 GMT, Chakolate <chakolateDeathToSpamm…@allvantage.com> wrote: >Terri <terr…@verizon.net> wrote in news:F_Xtd.3549$E_6.1727@trnddc04: >> See: >> http://www.thelancet.com/journal/journal.isa >> Note that the study was funded by the drug company producing the new >> drug and that 6 of the researchers were paid by them. >I got ‘unknown page’ from this link.   >Chakolate

Click on "The Journal" on the blue menu bar at the top of page, though it appears that the full article is no longer freely available just a summary. Here’s the drug company press release, note the waffle words. http://www.newswire.ca/en/releases/archive/December2004/08/c2755.html I believe I heard the same CBC radio program last night as Tishy – this study does not show that women who are ‘currently’ using Tamoxifen would benefit by switching to the new drug therapy.   Kathryn

Response:

See: http://www.thelancet.com/journal/journal.isa Note that the study was funded by the drug company producing the new drug and that 6 of the researchers were paid by them.

Response:

CBC radio promptly produced an oncologist to point out that there is no befit of reduced mortality, that it costs about 10 times as much as tamoxifen, and there is no long term research. Nevertheless he considered it a viable option for some – but only some – women. I haven’t read the study, but from his remarks I gathered that the drug has a deleterious effect on bone? Tishy – Hide quoted text — Show quoted text -On Thu, 09 Dec 2004 12:59:17 GMT, Terri <terr…@verizon.net> wrote: >See: >http://www.thelancet.com/journal/journal.isa >Note that the study was funded by the drug company producing the new >drug and that 6 of the researchers were paid by them.

Response:

…after being diagnosed for the second time with breast cancer…

Question:

–Jan M., CAN 11 Nov 2002

On the face of it this would appear to be a commercial advertisement, which is unacceptable in this newsgroup and can result in action against the writer by their news service provider. It is one of several postings by the same user quoting two-year-old testimonials for this product, and not relating to the poster’s personal experience. These testimonials date from a time when the FDA issued several warning letters against companies promoting this product as a cure for various conditions. Any further advertisements will result in a complaint to the poster’s ISP. Tim Jackson

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In April of 1998, I was diagnosed with heart disease. I had experienced periodic episodes of dizziness, and learned that after wearing the 24-hour Holter monitor, sometimes there were 4-5 seconds between each heartbeat – no wonder I was lightheaded! In addition, my heart rate was dropping to only 27 beats a minute in my sleep. (Normal heart rhythm is 60 – 100 beats a minute.) I required a Pacemaker to remind my heart to beat when it seemed to be taking a break. This news was all a shock to me as I had been swimming and jogging regularly for 25 years. The cause was unknown in that I had not had a heart attack. My cardiologist felt that a bacteria or virus may have attacked my heart’s natural pacemaker, the sinus node six months previously when my immune system had been low resulting in pneumonia. My very good friend told me about noni nectar at the time of my surgery but, as she wasn’t taking it herself, I didn’t try it. (How could it be that good if she didn’t think enough of it to take it herself?) However, in June of 1998, she did take it after being diagnosed for the second time with breast cancer (she had lost one breast to a very aggressive cancer in 1996). She actually delayed her second mastectomy to try this juice. As a registered nurse, I couldn’t believe that she would take such a chance. However, only six weeks later, in August of 1998, they were unable to find her cancer – as a result she actually saved her breast! My question to her then was "What was the name of that Juice?!" As I am at high risk for that disease due to a very strong family history, I decided to try it starting in September 1998. I told my friend that if it could do that for her, hopefully it would keep my immune system strong so that I might be able to prevent breast cancer in myself. I also said to her that it was too bad it was too late for my heart as I already had my pacemaker. Within three weeks, I couldn’t believe the energy I felt in my body, especially while swimming. I actually felt like there should be a ‘wake’ behind me because I swam so fast! The following are the astounding results of the computer tests done with a magnet placed over my pacemaker: July of 1998: Three months after my surgery, (prior to taking noni)my cardiologist was very pleased to report that my pacemaker was only required to stimulate my heart 25% of the time. The battery would not need to be changed for 12 years (usually the battery only lasts 9 years). That meant that 75% of the time, my heart was functioning well on its own. July of 1999:(After 10 months on noni) My cardiologist scratched his head as he reported that my pacemaker was only required 10% of the time now and that my battery would still last for 12 years. He actually said that on the cellular level, my heart was functioning better than one year ago. September of 2000: My cardiologist said that the report was the same in that my pacemaker was still being used only about 10% of the time and that my battery would last 13 years! He said that, as I get older though, my heart would need to be using the pacemaker more. I told him about noni nectar, but rolled his eyes backwards and did not want any information about it. September of 2001: My cardiologist said that it is ‘almost unbelievable’ that now my pacemaker is required only 8% of the time and that my battery will still last 13 years. Since taking noni nectar, my heart’s function has improved from 75% to 92%! It is getting older and better at the same time! I guess it wasn’t too late for my heart after all! being required 4% of the time with the battery still to last another 13 years. This means my heart is functioning at 96% efficiency. I was even told that my heart is definitely no longer dependant on my pacemaker! All I can say is that I am very humble, grateful, and in awe of this wonderful juice. I am so energetic most of the time that my theme song by James Brown is. "I FEEL GOOD!" –Jan M., CAN 11 Nov 2002 http://www.tahitiannoni.com/1931235

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