Breast cancer research project help

Question:

Hello I wonder if anyone here would be able to help? I am a student on an access to nursing course in London and have been given a research project to do on breast cancer; in particular awareness of breast cancer and whether or not age is a factor in breast cancer awareness. If anyone here knows of anywhere; websites/organisations etc that would have any relevant information on breast cancer/breast cancer awareness, would you please be able to help? Thanks you Gemma.

Response:

Hello I wonder if anyone here would be able to help? I am a student on an access to nursing course in London and have been given a research project to do on breast cancer; in particular awareness of breast cancer and whether or not age is a factor in breast cancer awareness. If anyone here knows of anywhere; websites/organisations etc that would have any relevant information on breast cancer/breast cancer awareness, would you please be able to help?

Google is your friend. Mary – Hide quoted text — Show quoted text – Thanks you Gemma.

Response:

Care bags – Candlelighters – Childhood Cancer Foundation of Puget Sound *xpost*

Question:

Teen breast cancer is rare, the high risk clinic at my  cancer  hospital I see states they don’t ant to see my daughter until age 25-30  Years of age. My last search on the topic of teenage breast cancer showed the incidence rate in the US was 0-2 cases a year, which is proved by your postings ( thanks you  research, it helped to make my argument)We don’t solicit money on this group  either. I have as well as others  have participate in fundraisers but the member here have never asked for donations.  At the cancer hospital I go to the children are well taken care of as the should be. I see most cancer hospitals treat children with TLC as it  should  be. This is not a moderated group, like cancer support, we do all have the right to post. be polite ( which I think I was ?) and have a conversation,  Alex Sorry if you feel it is mean spirited….personally posts that ask for donations are a turn off to me as well as topics unrelated to breast cancer. —

– Hide quoted text — Show quoted text – What does this have to do with breast cancer? Moderating, are you? or just feeling mean-spirited? (see below) http://www.candlelightersps.org/carebags.htm Our Organization also provides family emergency services funds and funeral funds for the families that are referred to us by the social worker from the hospitals. We are the only organization that provides these services in this area to childhood cancer families. We are the only organization that provides childhood cancer family’s Care bags and support groups in Western Washington. <snip http://www.ingentaconnect.com/content/klu/anno/2000/00000011/00000010… Secretory carcinoma of the breast is a rare and indolent tumour originally described in children but occurring equally in the adult population. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&… A 9-year-old girl presented with a 3-year history of a right breast mass. Excisional biopsy showed a secretory carcinoma. Teen Back Pack http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&… Breast cancer in adolescent females.  J Pediatr Surg. 1995 Feb;30(2):322-4. A big Thank You to everyone who has helped us getting the information we need for the teen pack to be a reality. Our target date is the 1st of <snip J

Response:

What does this have to do with breast cancer?

Moderating, are you? or just feeling mean-spirited? (see below) http://www.candlelightersps.org/carebags.htm Our Organization also provides family emergency services funds and funeral funds for the families that are referred to us by the social worker from the hospitals. We are the only organization that provides these services in this area to childhood cancer families. We are the only organization that provides childhood cancer family’s Care bags and support groups in Western Washington. <snip

http://www.ingentaconnect.com/content/klu/anno/2000/00000011/00000010… Secretory carcinoma of the breast is a rare and indolent tumour originally described in children but occurring equally in the adult population. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&… A 9-year-old girl presented with a 3-year history of a right breast mass. Excisional biopsy showed a secretory carcinoma. Teen Back Pack

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&… Breast cancer in adolescent females.  J Pediatr Surg. 1995 Feb;30(2):322-4. A big Thank You to everyone who has helped us getting the information we need for the teen pack to be a reality. Our target date is the 1st of <snip

J

Response:

- Hide quoted text — Show quoted text – http://www.candlelightersps.org/carebags.htm Our Organization also provides family emergency services funds and funeral funds for the families that are referred to us by the social worker from the hospitals. We are the only organization that provides these services in this area to childhood cancer families. We are the only organization that provides childhood cancer family

Care bags – Candlelighters – Childhood Cancer Foundation of Puget Sound *xpost*

Question:

What does this have to do with breast cancer? —

– Hide quoted text — Show quoted text – http://www.candlelightersps.org/carebags.htm Our Organization also provides family emergency services funds and funeral funds for the families that are referred to us by the social worker from the hospitals. We are the only organization that provides these services in this area to childhood cancer families. We are the only organization that provides childhood cancer family’s Care bags and support groups in Western Washington. Care Bags     * Candlelighters Newsletters     * Maps of the surrounding areas and phone cards     * Teddy Bear     * Childs quilt (hand made)     * Coloring books, markers, crayons, crossword puzzles     * Disposable camera     * Childhood Cancer awareness packet with support referrals     * Childhood Cancer awareness gold ribbon pin     * Nancy Keene Childhood cancer family support books     * American Cancer Society support books and reading pamphlets     * Neck pillow for comfort during treatments     * Notebook, calendar, address book, journal, food coupon book Sponsors for Care Bags As you know the Care bags is our biggest program for families and we have delivered over 350 this year to parent’s or families with children diagnosed with cancer. The value is $250.00 per bag and we receive $125.00 in donations. If you would like to sponsor a Care Bag for $125.00 or have your family, office, neighborhood, school or church sponsor a Care Bag for a family please contact us. Books We are putting together a book club list for parents and friends that have been affected by Childhood cancer. If you have read a book that you would like to recommend that had helped you during diagnosis, treatment, grieving, or help with getting back to school please let us know and we can add it to the list we provide newly diagnosed parents and families. Teen Back Pack A big Thank You to everyone who has helped us getting the information we need for the teen pack to be a reality. Our target date is the 1st of Dec. We are always open to Sponsors and suggestion please e-mail us at Western Washington Hospital Home Pages # Group Health Eastside – Click Here # Fred Hutchinson Cancer Research Center – Click Here # Mary Bridge Children’s Hospital – Click Here P.O. Box 1138, Bothell, Washington 98041

Response:

- Hide quoted text — Show quoted text – http://www.candlelightersps.org/carebags.htm Our Organization also provides family emergency services funds and funeral funds for the families that are referred to us by the social worker from the hospitals. We are the only organization that provides these services in this area to childhood cancer families. We are the only organization that provides childhood cancer family

Pretty In Pink

Question:

Please wear pink on Friday, October 29, in support of Breast Cancer Awareness Month.  Please let others know about this. Thanks

Response:

girles lets all go topless and paint our breast pink,on friday october 29 to support breast cancer awareness month. lets meet at locos bar, in winder ga at 12 noon.

Response:

Newbie!

Question:

- Hide quoted text — Show quoted text – Hello all, My name is Reina and I am a 24 year old living in Washington DC. I joined this group because I have had a number of women in my family and church who have experienced breast cancer, and I like to stay informed about this disease. On April 30th I will take place in the Avon Breast Cancer Walk. If you can support me, that would be great. If you can’t, that’s ok too, just please say a prayer for me. If you are in the Washington DC area, I along with my walking team will have a benefit concert/poetry reading/auction in order to raise money for breast cancer research. Here is the link for the benefit concert: http://www.geocities.com/breastcancerbenefit/ Here is where you can support me: http://www.avonwalk.org/site/TR?px=1572578&fl=en_US&s_tafId=1182&pg=p… Thanks, and I look forward to being an active member of this group. Best, Reina

Welcome to the group Reina.  Do enjoy the walk and I hope you raise lots of money. I think you will find this group stony ground for fund-raising, most people here have their own personal cancer problems to finance, but I am sure I speak for all in saying that we are grateful for what you and the other walkers are doing to help raise awareness and push forward research in this field, and that many will offer prayers, according to their faith. — Tim Jackson -Who needs to pay Microsoft?  Free Open Source Software- www.mozilla.org       FIREFOX Web Browser,  THUNDERBIRD Email/News www.openoffice.org      Office Suite

Response:

Hello all, My name is Reina and I am a 24 year old living in Washington DC. I joined this group because I have had a number of women in my family and church who have experienced breast cancer, and I like to stay informed about this disease. On April 30th I will take place in the Avon Breast Cancer Walk. If you can support me, that would be great. If you can’t, that’s ok too, just please say a prayer for me. If you are in the Washington DC area, I along with my walking team will have a benefit concert/poetry reading/auction in order to raise money for breast cancer research. Here is the link for the benefit concert: http://www.geocities.com/breastcancerbenefit/ Here is where you can support me: http://www.avonwalk.org/site/TR?px=1572578&fl=en_US&s_tafId=1182&pg=p… Thanks, and I look forward to being an active member of this group. Best, Reina

Response:

Adrienne, Wonderful letter, thank you, as far as my husband is concern, nothing new there,  I had other kind of surgeries before and he was never here, funny thing I was there for him when he had his angioplasty few months ago, 90% blockage in two arteries, and he’s only 43… I will make it, and it might make me stronger, I have to tell you again, you are ALL so wonderful. Thank you. Kiki

Response:

Ann, Thank you, I have ups and down, I have been on Zoloft for the past year, and suddenly it doesn’t seem to work anymore, I will let you know about my coming biopsy on Monday. You all gave me strength and I am grateful for it. Kiki.

Response:

No specific question, just the need to talk, after reading the other posts I feel ashamed to come here because I am afraid of the coming biopsy.

Hi, Kiki! Hey, come around & chat anytime.  You don’t have to have questions, or anything real structured.  Sometimes we even get waaaay off topic. It’s absolutely, totally rational to be afraid about the biopsy.  Even if you think there ought to be "nothing to be afraid of", it’s OK to be fearful.  Even though odds are it will turn out to be benign, it’s OK to be fearful. Some people worry that it will hurt.  Might do, but probably not much. Some people worry about the results — and yes, waiting for them is a major stressor.  One thing I find amusing (when I observe it in myself) is that once I am scheduled for or have some test (bone scan, x-ray, what-have-you), I get all worried about what the results are going to be . . . even though whatever may be lurking there to be detected was there even before anyone ever thought of doing that particular test! And, please don’t be ashamed to come here, under any circumstances: It’s a *support* group.  Mulling over fears & anxieties is one of the things we’re here for! My husband left on a business trip, and will not be here next Monday, he’s only two hours away, so really he could be here. I had a best Friend who went back to her native country, France, and my Daughter and Grand- Baby are also there,  . . .

Others have had some suggestions about approaching your husband. They’re good ones, but only you know the dynamic of your particular relationship.  I’m here to tell you that in practice this is a "hubbies optional" ride:  If someone has a supportive, involved spouse, that’s absolutely wonderful (and I envy them).  But, as a live-alone widow, I went through the diagnosis by myself, and it’s do-able on that basis. Not optimal, not great, but do-able. You’re gonna be OK.  You’ll get through this. Honest! We’re here for you to help as we can. Here’s hoping the biopsy comes out benign!  If it does, I hope you’ll let us know (we love good news).  If you get less happy news, please ask questions, vent, or whatever helps you. Sending you well-wishes, Ann T.

Response:

Has anyone heard from Jennifer ? Last we heard she had her first chemo. Alex

Response:

Hello everyone, No specific question, just the need to talk, after reading the other posts I feel ashamed to come here because I am afraid of the coming biopsy. My husband left on a business trip, and will not be here next Monday, he’s only two hours away, so really he could be here. I had a best Friend who went back to her native country, France, and my Daughter and Grand- Baby are also there, this year was very stressful, my Daughter had major surgery to removed entire colon and rectum, she had Ulcerative Colitis for the past nine years, meds didn’t work anymore, I was there for a month to take care of the little one. I am sorry to go on and on, I will stop for now, and wish everyone of you the best, you are all so strong… Thank you for let me be part of your big family, I will keep you posted about my biopsy. Kiki.

Response:

Hello everyone, No specific question, just the need to talk, after reading the other posts I feel ashamed to come here because I am afraid of the coming biopsy.

Hi KiKi, We’ll be thinking of you on Monday. Please let us know how you are doing and post anytime you want. Marilyn

Response:

Thank you so much Marilyn. Kiki.

Response:

The waiting is the worst part, when are you having it done? Please feel free to vent anytime. ALex

Response:

"I feel ashamed to come here because I am afraid of the coming biopsy. My husband left on a business trip, and will not be here next Monday, he’s only two hours away, so really he could be here." First of all, never be ashamed of fear. Fear can serve you, too. That’s the sort of thing this group is here for. — I’m sorry you’re so afraid. We’ve all been there and know the tumbling feelings going on inside. — Metaphorically holding your hand, as this is one of the scariest times. (It does get better when you ‘know’ one way or another.) Secondly: I’d suggest that TELL your husband that you NEED him there with you, and insist that he be there! Business can wait, there’s always someone else who can cover for him there — but not with you. You need to be his priority right now. — This is not a laughing matter nor one to be ignored because he doesn’t believe anything is really wrong. (That can also be seen as denial on his part, although some men simply prefer to deal with reality vs ’speculation’.) Meanwhile, this is the kind of thing that can strengthen or weaken a marriage.  You need all the support you can get, so TELL the man. — If you don’t, you’ll have all this resentment built up, and that can’t serve you health wise, nor serve your marriage. Why am I saying this? Been there, done that, created an unnecessary mess in the process. FWIW,  I’m too independent for my own good. Was so terrified and numbed I didn’t ask mine to be with me. I should have and suffered a real meltdown because of that. He couldn’t read my mind, nor comprehend my fears. (He  had his own going on.)  As a result I felt extremely alone and abandoned.  I had to acknowledge those feeings, translate them via what I might have done (or not) to create the chasm, and tell him first.  Once clarified, he has been a MAJOR rock for me ever since.– Sometimes all it takes is earnest communication. — That’s one thing it looks like you need right now. — The other is understanding, and you’ve got that right here on this group. Hang in there, Kiki… it’s going to be all right, no matter what that biopsy shows. Namaste, Adrienne

Response:

Thank you so much Barb, I find it amazing to see the caring and understanding in your group, I guess I am not use too. Thank you again, Kiki

Response:

<< The reason that I am really freaking out, is that the prior cysts and biopsies were on the left breast, this time the left. <BR<BR Kiki, so sorry you are dealing with this.  I am glad that you have a concerned dr, though.  I do hope that whatever is there is benign.  Have they done an MRI?

Response:

Hi Kiki, Just adding my wishes for completely benign results.  As others have said, most breast lumps are not malignant.  If it is, you’re catching it early and that’s important. I’m sorry your husband isn’t able to be more supportive.  Keep writing to this group.  There are many knowledgable and compassionate folks here who will listen and reply. My best wishes to you, Kiki. Barb

Response:

Hello everyone, Well another abnormal mammogram, I have an history of cysts, numerous biopsies, so far everything came back ok. Late afternoon, call from my OBGYN, requesting a biopsy for density on my right breast, and again, I am out of my mind. The reason that I am really freaking out, is that the prior cysts and biopsies were on the left breast, this time the left. Absolutely no support from my wonderful Husband, who told me all doctors were quacks, and that I was getting on his nerves. Please help. Alone in the USA. Kiki

Response:

Hey Kiki, Most cysts are not cancer. How old are you? The younger you are the less likely it would be cancer. The doc is not asking for an ultrasound ( can tell if they are a cyst or not). I remember when had my initial mammogram, I knew something was wrong since they immediate, told me they found something and scheduled an ultrasound. My husband told me I was over reacting, the rest is history. Any ways we are here for you. Alex — "

Response:

Well another abnormal mammogram, I have an history of cysts, numerous biopsies, so far everything came back ok. Late afternoon, call from my OBGYN, requesting a biopsy for density on my right breast, and again, I am out of my mind. The reason that I am really freaking out, is that the prior cysts and biopsies were on the left breast, this time the left. Absolutely no support from my wonderful Husband, who told me all doctors were quacks, and that I was getting on his nerves.

Why is an abnormality in the other breast a cause for freaking out?  They both have pretty much the same genes, so a tendency that way would tend to happen in both.  I would feel the fact that other scares have proved benign would be a reason to assume this will also, at least until proved otherwise. And the statistics support that belief – the vast majority of abnormalities prove benign. Sorry your husband can’t be more supportive.  I guess he’s scared too. Tim Jackson

Response:

Hey, Thank you for answering, I am not young , 56 years… This time because of my history with cysts, the Doctor did an ultrasound first, the results were fine, well, he told me I had a multitude of cysts. They did the mammogram few days ago, and talked about an area of density, so now biopsy time. What do you think? Thanks again, Kiki

Response:

Thank you Tim, my husband’s name by the way…he’s not scared, he will not be with me for the biopsy, his choice…. and having no Family left made it hard to deal with that kind of events. Kiki

Response:

I think your doctor is being careful which is great. Area of density could be nothing  but best to have answers. We are here for you! Hope you don’t need to join. Waiting  for answers is the worst part, worst case scenario it was caught early and breast cancer found early has great prognosis. —

– Hide quoted text — Show quoted text – Hey, Thank you for answering, I am not young , 56 years… This time because of my history with cysts, the Doctor did an ultrasound first, the results were fine, well, he told me I had a multitude of cysts. They did the mammogram few days ago, and talked about an area of density, so now biopsy time. What do you think? Thanks again, Kiki

Response:

Osteoporosis cases surge amid new drugs

Question:

tmn…@aol.com (Tm n Kat) wrote in news:20040728214519.04299.00002401@mb-m15.aol.com: > The number of Americans diagnosed with osteoporosis surged sevenfold > over the past decade, coinciding with the development and marketing of > new drugs to treat the bone-thinning condition, a study found.

Probably coincides more with the marketing than with the development.   Chakolate — When people show you who they are, believe them.   –Maya Angelou

Response:

Osteoporosis cases surge amid new drugs Widespread marketing coincides with increased diagnoses The Associated Press July 26, 2004 The number of Americans diagnosed with osteoporosis surged sevenfold over the past decade, coinciding with the development and marketing of new drugs to treat the bone-thinning condition, a study found. As of 2003, there were an estimated 3.6 million people who had been diagnosed with osteoporosis, compared with half a million in 1994, according to the study by Stanford University researchers. Also, the number of doctor visits for the condition jumped to 6.3 million last year from 1.3 million in 1994. The increases coincided with the introduction of the bone-protecting drugs alendronate, sold as Fosamax, in 1995; raloxifene, or Evista, in 1997; and risedronate, or Actonel, in 1998. All three are among the non-hormonal alternatives to estrogen supplements, which have long been used to prevent osteoporosis but have lost popularity because of recent studies linking them to heart problems, breast cancer and other risks. In 1988, estrogen was prescribed at 35 percent of osteoporosis-related doctor visits, but that fell to 3 percent last year, the study found. The estrogen alternatives have grown into a multibillion-dollar-a year industry with widespread ads and slick promotional campaigns that have helped raise awareness about osteoporosis. The researchers said

Healthy eating

Question:

Can someone recommend a book(s) on healthy eating/diet for cancer suffers and people undergoing radiation treatment?  No cranky stuff please, for the time being I’d like to keep it mainstream.

"Healthy eating for cancer patients" usually means including some aspects of the macrobiotic diet.  You can do no better than Christina Pirello’s "Cooking the Whole Foods Way." If you’re after more than a cookbook try doing a google for Dr. Keith Block.  He’s a nutritional oncologist who operates a private clinic north of Chicago.  Heck, depending on your financial situation you might want to have his clinic do a workup for you.  http://www.blockmd.com for more information. Disclaimer: My only connection to any of the above recommendations is as a satisfied customer. – Tony — Tony Lima                        /"   ASCII ribbon campaign                                   /   against HTML mail                                   X    and postings                                  /

Response:

<< Can someone recommend a book(s) on healthy eating/diet for cancer suffers and people undergoing radiation treatment?  <BR<BR Helpful website: http://www.whfoods.com/genpage.php?tname=nutrient&dbid=59

Response:

– Hide quoted text — Show quoted text – << recommend a book(s) on healthy eating/diet for cancer suffers and people undergoing radiation treatment?  No cranky stuff Hi Maria-um not sure what you mean by ‘cranky stuff’ but guess it is anything out of the norm.  Most who do write cancer diet books do so with the intent to convey something far-out and different.  That’s what sells the book. I asked my oncologist about diet.  He told me just to eat ‘healthy’–i.e. fish, chicken, fruits, vegetables.   You might try doing a google search with the words: diet and radiation.  I radically changed my diet at time of dx and then slowly relaxed the extremeness of it–but did that based on my assumption that my previous diet wasn’t the healthiest and that it may have set the conditions which allowed the cancer cells to proliferate.  Thus, doing something that would result in a radical change might interfere with whatever it was that allowed the cancer cells to develop at the aggressive rate they were going. I am not sure anyone diet is ‘right’ universally, but I have read good things about the mediterranean diet being associated with one of lowest cancer risks. That includes lots of olive oil and foods like tabouli parsley) and cooked tomatoes. I had asked my oncologist for diet and even alternative

recommendations–and – Hide quoted text — Show quoted text – since he is from mainland China  hoped he  would have something unusual to suggest.  He just said lean meats–chicken, fish and fruits and vegetables and to keep things in moderation. I started eating alot of vegetables–went to  local health foods store for their freshly made, custom ordered  vegetable juices.  One store made theirs with celery, parsley, cucumber, carrots, beets, apple, and ginger—and I asked them to leave out the ginger (although it’s supposed to be ‘good’ it wasn’t something I cared for).  The other health foods store put spinach in their juices and still another used broccoli. Most recently I found an article that talked about the relationship between one of the cancer pathways being  stopped–p53 and I think it was also indole. There is alot of research going on with that.  I did a search re p523 inhibition, indole, and diet and found that cruciferous vegetables can be beneficial for that.  Cruciferous vegetables include broccoli, califlower, brussels sprouts, and cabbage.  In addition carrots an beets are also supposed to be beneficial.  Another ‘natural’ food that is also supposedly good is wheat grass.  Our local health foods store mixes that up fresh. I am not sure if this is helpful or in the format you’d like but just don’t think there is any ‘right’ book out there for everyone.  There are quite a few–from Jane Plant’s no dairy book to ones that are supposedly ‘right’ for each blood type.   Each of our cancers responds differently. All I can say is that I was dx’d with 3 types of  very aggressive breast cancer, 9 positive nodes, and extensive lymphovascular invasion 3 years ago–and my most recent PET scan (2 days ago) looks good.  I changed my diet to eating lots of vegetables (and also fruits).  In addition to vegetable juicing I make a huge fresh vegetable soup–3, 2 gallon jars worth–using a ton of vegetables–from turnips to carrots, sweet potatoes, mushrooms, spinach–and whatever else looks interesting.  In addition I added exercise to my daily regime.  I did do the full treatment–bilateral mastectomy, chemo, rads, more chemo, hormonals, then had to take thyroid med (became hypothyroid) and they added a statin drug (cause my cholesterol went up despite losing weight and doing exercise) which also has anti-tumor properties–and then I added some stuff on my own (all of which my oncologists agree with as well as another dr. who has breast cancer herself and is doing same)–that is Celebrex and Doxycycline–both of which have anti-tumor properties. Oh, and I just read a research article that reported that using a cox2 inhibitor (Celebrex) along with radiation appears to render it more effective. So, hope I haven’t bored you with all this.  If you have read this far–wishing you all the best!  Take care…

By "cranky stuff" I probably mean that I am not yet ready or desperate enough to forswear all diary or become a strict vegan! I like my food but, like yourself, recognise I have a diet that could be improved (basically by including more fruit, more vegetables and more fish). I read your reply in full and am very grateful for it.  Within the space of a month I have suddenly found myself in this strange place called BC and am trying to make some sense of it all. All the best Mar

cost of Ambien in the UK

Question:

On Thu, 30 Oct 2003 17:51:08 -0800, hopp…@nospam.com wrote: >We sure are getting ripped off in the USA. >USA online price >Ambien 10mg (90 pills) $359.00

Need to try a different online pharmacy…. $210 is more like it. It helps not to try the ones that SPAM if you want a reasonable price. >UK price to doctors..for same thing.. >Zolpidem tartrate tablets

The US patent expires October 2006 unless one of the generic companies pokes a hole in it. Two are FDA "conditionally approved" which usually means they had or have a patent claim in litigation. I should point out that you’re getting ripped off by the French (Sanofi-Synthelabo) in this case! — October is National Breast Cancer Awareness Month: http://www.nbcam.org/

Response:

On Thu, 30 Oct 2003 19:59:54 -0800, hopp…@nospam.com wrote: >I’m not getting ripped of because I’m not buying, also I was not spammed >by them I found that figure on google.  

As if Google is a place to buy prescription drugs? — October is National Breast Cancer Awareness Month: http://www.nbcam.org/

Response:

Had surgery still snoring help!!!

Question:

Does anyone understand why CPAP would cause pressure on the ears? Eileen, have you discussed this with the doctor who inserted the tubes? Anna in article 20031030091120.10683.00000…@mb-m17.aol.com, HERRONME at herro…@aol.com wrote on 10/30/2003 7:11 AM: – Hide quoted text — Show quoted text -> Quick, > AllI know is I had ear tubes, I tired the cpap after having them and got ear > aches and tremendous presure in my ears. I could not tolerate the cpap. It > puts > press usre on the eardrums from what I understand. I now have an eartube in > one > ear and am really afraid it will hurt me. I certainly don’t want to blow my > eardrum or lose my hearing in that ear. Will the pillows create less pressure > than he mask??? > To top it all off I got water in my ear, the one wioth the tube, and now have > a > killer earache…. > Eileen

Response:

For the same reason that you have equalize pressure in  your ears when changing altitude. You do that by valsalvoing (??). Swallowing, swallowing with your mouth open, holding your know and swallowing, or holding your nose and blowing, all will change inner ear pressure. All those tubes back there have common connections. Gary "Anna LeBlanc" <lebla…@qwest.net> wrote in message

news:BBC7C383.11691%leblancr@qwest.net… – Hide quoted text — Show quoted text -> Does anyone understand why CPAP would cause pressure on the ears? Eileen, > have you discussed this with the doctor who inserted the tubes? > Anna > in article 20031030091120.10683.00000…@mb-m17.aol.com, HERRONME at > herro…@aol.com wrote on 10/30/2003 7:11 AM: > > Quick, > > AllI know is I had ear tubes, I tired the cpap after having them and got ear > > aches and tremendous presure in my ears. I could not tolerate the cpap. It > > puts > > press usre on the eardrums from what I understand. I now have an eartube in > > one > > ear and am really afraid it will hurt me. I certainly don’t want to blow my > > eardrum or lose my hearing in that ear. Will the pillows create less pressure > > than he mask??? > > To top it all off I got water in my ear, the one wioth the tube, and now have > > a > > killer earache…. > > Eileen

Response:

"Gary G. Little" <gary.g.little.nos…@seagate.com> wrote > For the same reason that you have equalize pressure in  your ears when > changing altitude. You do that by valsalvoing (??). Swallowing, swallowing > with your mouth open, holding your know and swallowing, or holding your nose > and blowing, all will change inner ear pressure. All those tubes back there > have common connections.

I’m at 12cm. When I’m under pressure and swallow ("wrong") I get the same sensation that you do in an airplane going up or down. It’s not painful but rather annoying and a tiny bit uncomfortable. I have to turn off the machine (or disconnect the hose from the interface), equalize the pressure again using a method above and turn it on again.  Only takes a few seconds.  Doesn’t seem to happen when I’m asleep and not often when awake. If I swallow carefully I can prevent it. If my ears were not normal or I’d had surgery or a tube or something I can imagine that it might be more significant. -Quick

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Does anyone understand why CPAP would cause pressure on the ears? Eileen, have you discussed this with the doctor who inserted the tubes? Anna ########################### Anna, I see the ENT  Wednesday….the pulmonologist wants me to trythe vcpap again. I think they are running out of options. I am half considering the somaplasty. My tongue is too big for my mouth. Has anyone here had that surgery???? Eileen

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On 01 Nov 2003 01:11:55 GMT, HERRONME wrote: >Does anyone understand why CPAP would cause pressure on the ears?

Eustachian tube, connecting the (pressurized) inside of throat with the inner ear. So, you get a pressure difference between the inside and the outside. Fortunately, I’m usually not bothered by it. — October is National Breast Cancer Awareness Month: http://www.nbcam.org/

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Hi Eileen,   I had ear tubes in both ears a year or so before being diagnosed with apnea. At the time I started cpap, the left one had already worked out, but the right one was still in place.   I discussed it with the ENT, who said the additional swelling in the throat caused by apnea and snoring had probably contributed to the blockage of the eustachian tube, and that with proper therapy(including heated humidifier, and flonase)  the swelling might go down, hence allowing the eustachian tube to function (drain) better.   OK. I started cpap at 18…MOST of the time I noticed NO difference between the ear with the tube vs the ear without the tube.  But every once in a while (maybe once a month), the ear with tube would startle me with a loud POP, then a whistle.  I assume I blew it open/clear, letting air pass thru.  The tube is so very tiny, it made a whistle noise.  How did I deal with this?  Only having a tube in one ear, I simply put that ear against my pillow….stopping the whistle and would go right to sleep. This caused no pain or discomfort…just noisy.   I guess if I had tubes in both ears, I would need to put cotton in one of them to stop the whistle.   Another thing, if you will start with ramp, it gives your ears a chance to adjust gradually to the pressure each night, and an autopap gives a lower overall pressure thru the night…both are kinder to the ears than starting off full tilt.  Good luck, Hope this helps

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You’ve dealt with problems from the mouth up. After opening the nasal passages, are you able to breathe freely thru your nose, or are you mouth breathing at night? You can still have obstructions from the mouth down. Some dentist an fix you up with a device that causes your lower jaw to shift forward, moving the tongue with it. Losing weight will certainly help. Don’t look at it as a temporary change of diet. You have to completely change what and how you eat for the rest of your life.

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I have always breathed thru my nose. Not a mouth breather. Can’t  do the dental appliance as I have had TMJ and moving the jaw forward would cause more problems. I know I need ot lose weight but it si asuch a slow process… Eileen

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Quick, AllI know is I had ear tubes, I tired the cpap after having them and got ear aches and tremendous presure in my ears. I could not tolerate the cpap. It puts press usre on the eardrums from what I understand. I now have an eartube in one ear and am really afraid it will hurt me. I certainly don’t want to blow my eardrum or lose my hearing in that ear. Will the pillows create less pressure than he mask??? To top it all off I got water in my ear, the one wioth the tube, and now have a killer earache…. Eileen

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Well I did say "discuss the possibility". ME "Quick" <dhorw…@NOSPAMcisco.com> wrote in message

news:1067482192.224226@sj-nntpcache-5… – Hide quoted text — Show quoted text -> "ME" <dontbothe…@nospam.com> wrote > > Discuss the possibility of a Trach with your doc. > Ummm… Eileen said that the surgery seems to have the > apnea down to an acceptable level (maybe not?) and > that she was humiliated by the snoring… somehow I > don’t think a trach will be the first option on her list. > I could be wrong. > -Quick

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I can’t see where a mask would be any different than pillows. Unless the mask you had was a full face mask and you were breathing through your mouth. If that was the case then I don’t know enough anatomy to answer. If it was a nasal mask then there won’t be a difference at your ears.  8cm through the nose with a mask is still 8cm through the nose with pillows. -Quick "HERRONME" <herro…@aol.com> wrote – Hide quoted text — Show quoted text -> Quick, > AllI know is I had ear tubes, I tired the cpap after having them and got ear > aches and tremendous presure in my ears. I could not tolerate the cpap. It puts > press usre on the eardrums from what I understand. I now have an eartube in one > ear and am really afraid it will hurt me. I certainly don’t want to blow my > eardrum or lose my hearing in that ear. Will the pillows create less pressure > than he mask??? > To top it all off I got water in my ear, the one wioth the tube, and now have a > killer earache…. > Eileen

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I just assumed that the "pressure on the ears" had something to do with internal pressure because of the ear tube and whatever. Maybe that doesn’t make sense if the doc wants to try nasal pillows.  Can you clarify that Eileen. What exactly did you mean by too much pressure on the ears? -Quick "Gary Rimar" <m…@garyrimar.com> wrote in message

news:az%nb.6531$P%1.5199594@newssvr28.news.prodigy.com… – Hide quoted text — Show quoted text -> Trache was a nuclear bomb to kill a fly.  Don’t go there. > Nasal pillows aren’t bad as part of the Breeze headgear, and your ears won’t > be damaged by them (I don’t think). > Even better is the Nasalaire. > Eight cm of pressure is not much at all and so you should be able to adapt > easily. > Thirteen awakenings hourly is an indication of apnea from my perspective. > If you were down in the middle single digits (five or so), then that would > be more reasonable. > You’re a prime candidate for CPAP success if you can find headgear you like. > Best of luck to you. > Gary > "HERRONME" <herro…@aol.com> wrote in message > news:20031029160334.23772.00000278@mb-m21.aol.com… > > I had the uvulectomy, tonsilectomy and aednoidectomy and had my nasal > > turbinates trimmed last Nov. 1. I went from 37 awakenings in an hour to 13 > but > > still snore. I am female . It is  humilating. We had to make up an extra > > bedroom so hubby can get some sleep. He wears earplugs , still hears me > and > > says I snore with every breath…. > > Now Dr. wants me to try the nasal pillows….I was not able to use the > mask > > beofre surgery. put too much pressure on my ears. Thing is I am overweight > and > > have an ear tube in  one ear. My cpap is set on 8 > > Anyone have any suggestions for rme or have suffered the sdame fate. I am > > tryignto lose weight , it keeps finding me…. > > Any advice????? > > Eileen

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Trache was a nuclear bomb to kill a fly.  Don’t go there. Nasal pillows aren’t bad as part of the Breeze headgear, and your ears won’t be damaged by them (I don’t think). Even better is the Nasalaire. Eight cm of pressure is not much at all and so you should be able to adapt easily. Thirteen awakenings hourly is an indication of apnea from my perspective. If you were down in the middle single digits (five or so), then that would be more reasonable. You’re a prime candidate for CPAP success if you can find headgear you like. Best of luck to you. Gary "HERRONME" <herro…@aol.com> wrote in message

news:20031029160334.23772.00000278@mb-m21.aol.com… – Hide quoted text — Show quoted text -> I had the uvulectomy, tonsilectomy and aednoidectomy and had my nasal > turbinates trimmed last Nov. 1. I went from 37 awakenings in an hour to 13 but > still snore. I am female . It is  humilating. We had to make up an extra > bedroom so hubby can get some sleep. He wears earplugs , still hears me and > says I snore with every breath…. > Now Dr. wants me to try the nasal pillows….I was not able to use the mask > beofre surgery. put too much pressure on my ears. Thing is I am overweight and > have an ear tube in  one ear. My cpap is set on 8 > Anyone have any suggestions for rme or have suffered the sdame fate. I am > tryignto lose weight , it keeps finding me…. > Any advice????? > Eileen

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You are NOT serious about the  trach are you? The pulmonologist says I don’t even have apnea. I have no trouble breathing… OMG and I thought the other options were grizzly…. anyone else have an idea??? Eileen

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Discuss the possibility of a Trach with your doc. ME

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"ME" <dontbothe…@nospam.com> wrote > Discuss the possibility of a Trach with your doc.

Ummm… Eileen said that the surgery seems to have the apnea down to an acceptable level (maybe not?) and that she was humiliated by the snoring… somehow I don’t think a trach will be the first option on her list. I could be wrong. -Quick

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I had the uvulectomy, tonsilectomy and aednoidectomy and had my nasal turbinates trimmed last Nov. 1. I went from 37 awakenings in an hour to 13 but still snore. I am female . It is  humilating. We had to make up an extra bedroom so hubby can get some sleep. He wears earplugs , still hears me and says I snore with every breath….     Now Dr. wants me to try the nasal pillows….I was not able to use the mask beofre surgery. put too much pressure on my ears. Thing is I am overweight and have an ear tube in  one ear. My cpap is set on 8 Anyone have any suggestions for rme or have suffered the sdame fate. I am tryignto lose weight , it keeps finding me…. Any advice????? Eileen

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I'm a little worried

Question:

This is better than the kind of things mine drag in and leave on the living room floor. The last one was a baby squirrel

– Hide quoted text — Show quoted text – I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.

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I used to have a wonderful black labrador who was almost human but boy! you’d never believe the things he stole  and we could never find the owners but he stole everything from a plastic watering can to a round white fur rug a tray holding a huge chicken sausages and bacon, the list was endless.  Jean P

– Hide quoted text — Show quoted text – I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.

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Now, now, John……how could he pick pockets without opposable thumbs? As my RB sister used to say, "when they have thumbs, they won’t need *us* to open cans for them anymore". BTW, Oct. is Breast Cancer Awareness (OT) month, cat friends. Our beloved DurDur (RB) loved shiny jewelry/objects and he had a regular stash of them under our bed but he didn’t go outside at all. I would guess your boy found that shiny money clip and hauled it home in his teeth, just as DurDur would have. It used to amaze us that he never swallowed any of the small shiny objects…..and we’re talking hoomin rings and necklaces here from off the dressers! Does Bruiser have a "stash"?

He doesn’t have a stash, at least I haven’t found one, but he is young.   I think its more he gets fascinated with things for awhile and then loses interest.  It doesn’t have to be shiny either.  I have seen him drag a rag back to the house and protect it from anyone who he thinks wants his treasure.  What is odd is no one has ever tried to take it away from him.  Then the next day he has absolutely no interest in it.  He eats as though he expects to have it stolen from him as well.  Kibble he tosses out of the dish and eats off to the side.  He also eats very fast.  I think he had a very competitve litter.  When I first saw the litter his brother was the dominant kitten.  Two weeks later he was dominant in the litter. – Hide quoted text — Show quoted text – I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them. The question I had while reading this….where’s the money? I hope you don’t find ill-gotten stashes of catnip and Fancy Feast hidden somewhere!! I am hoping it was an empty money clip he found on the ground but if he shows up with a fancy new collar or or a case of tuna he is in a lot of trouble.

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.  

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.

Oh, no, John. A cat burglar? Like the one who brings home clothes and stuff from the neighbourhood, except Bruiser goes directly for the money… You may have a problem there (but LOL!). — Marina

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the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy

Or you could just train him to look for money clips with money *in* them… — Victor Martinez Owned and operated by the Fantastic Seven (TM)

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.

He’s a cat burgler! — Jette Goldie Apache and Dakota http://www.jette.pwp.blueyonder.co.uk/kitties.html

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LOL! Well, I hope he didn’t burgle anybody. Jazz & his mama — Irulan from the stars we came, to the stars we return from now until the end of time

– Hide quoted text — Show quoted text – I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.  

Maybe you should give him a good "talking to"    MLB

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– Hide quoted text — Show quoted text – I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.  

Maybe you should rename him the Rtful Dodger, after the pickpoceting orphan in the musical Oliver!. Suz Iron Chef Macmoosette Thank Heavens There’s Only One =^..^=   =^..^=   =^..^=   =^..^=  =^..^=  =^..^= Chocolate heals all wounds.                  

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.   Maybe you should give him a good "talking to"    MLB

Yeah, tell him what happens to furkids with "sticky fingers".  I can see the headlines now.  "Klepto Cat Arrested!"  :) Nan

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.  

The question I had while reading this….where’s the money? I hope you don’t find ill-gotten stashes of catnip and Fancy Feast hidden somewhere!! Sherry

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I found a polished brass money clip laying in the middle of the living room this morning.  It wasn’t mine and no one has been in there lately to lose one.  Bruiser loves shiny things and also likes to carry toys around.  I find his toys outside and things like wadded paper towels in the living room that he brought in.  I hope he just found it laying on the ground and liked it and brought it in.  I hope he didn’t slip in a neighbor place and steal and really hope if he did, it didn’t have any money in it when he did.  I really really hope he is not using his fuzzy cuteness to entice strangers into picking him up so he can pick pocket them.   The question I had while reading this….where’s the money? I hope you don’t find ill-gotten stashes of catnip and Fancy Feast hidden somewhere!!

I am hoping it was an empty money clip he found on the ground but if he shows up with a fancy new collar or or a case of tuna he is in a lot of trouble.

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Now, now, John……how could he pick pockets without opposable thumbs? As my RB sister used to say, "when they have thumbs, they won’t need *us* to open cans for them anymore". BTW, Oct. is Breast Cancer Awareness (OT) month, cat friends. Our beloved DurDur (RB) loved shiny jewelry/objects and he had a regular stash of them under our bed but he didn’t go outside at all. I would guess your boy found that shiny money clip and hauled it home in his teeth, just as DurDur would have. It used to amaze us that he never swallowed any of the small shiny objects…..and we’re talking hoomin rings and necklaces here from off the dressers! Does Bruiser have a "stash"?

: : : : I found a polished brass money clip laying in the middle of the living : room this morning.  It wasn’t mine and no one has been in there lately to : lose one.  Bruiser loves shiny things and also likes to carry toys : around.  I find his toys outside and things like wadded paper towels in : the living room that he brought in.  I hope he just found it laying on : the ground and liked it and brought it in.  I hope he didn’t slip in a : neighbor place and steal and really hope if he did, it didn’t have any : money in it when he did.  I really really hope he is not using his fuzzy : cuteness to entice strangers into picking him up so he can pick pocket : them. : : : The question I had while reading this….where’s the money? I hope you don’t : find ill-gotten stashes of catnip and Fancy Feast hidden somewhere!! : : I am hoping it was an empty money clip he found on the ground but if he : shows up with a fancy new collar or or a case of tuna he is in a lot of : trouble. : :

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